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Regular Member

Date Joined Jul 2012
Total Posts : 23
   Posted 7/30/2012 12:10 AM (GMT -6)   
I first posted here in the fibromyalgia forum because I am so unsure what to think. First back five years I started with uncontrollable stomach cramps. Not pains, cramps. When I experienced these I had diarhea constantly so I wasn't bound up. MRI showed a blockage so colonoscopy here I come. By the time they did it, nothing so ever since they dismissed it. I went to the ER a few times since only for them to tell me I'm bound up but find out I'm not. They were stumped and sent me home. Now I refuse to go in for it. Also for the past few years I have had continuous joint pain, raynauds, and fatigue. But recently have had low grade fever for four months, throat feels swollen, fatigue, face gets red ( rash ) in the heat, and sore everywhere. No one knows what is wrong. I have had 4 positive ANA' s in the past five years ( 1:320 ) but every other blood test seems fine. What is wrong with me? I have been tested for lymes, negative. I'm sick of feeling this way and have been out of work for two months. Please any info would be appreciated.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 7/30/2012 10:46 AM (GMT -6)   
Have you seen a rheumotolgist? Generally with a positive ANA you should get a referral to a rheumy as they are the specialists in that area and should be able to help figure out what is going on.

With Lupus, I have had cramping in the area where my stomach and the lower intestine meet. I can actually feel the cramp as it tightens and moves along the intestine. No one ever thought to take an MRI, I would get bloated with a bound up feeling, then when the cramp released I'd have some diarrhea.

You may not have Lupus, but with the fatigue and sore everywhere you may have MCTD or UCTD - lupus like not more diffuse diagnosis. A rheumy would probably treat -- how you react to certain meds helps narrow down the diagnosis between any of several AI diseases.

Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Jul 2012
Total Posts : 23
   Posted 7/30/2012 3:25 PM (GMT -6)   
Thank you for the response. I've seen two rheumatologists. I am scheduled to see a third next month. I was put on plaquenil a couple of months ago but they just seem baffled. Guess that's why I am so upset. I've been off work and suppose to stay off until I see the new rheumatologist.
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