Does Lupus run amok

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Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 7/30/2012 10:38 PM (GMT -6)   


Hello everyone,

Haven't logged in a while but wanted to know more about Lupus. I keep reading the logs but have not found exactly what I am looking for.

I was diagnosed with Lupus in May and was put on prednisone and hydroxclorquin (spelling bad) sorry. Well, I feel better but am at least 15 pounds heavier. I hate that.

But, here's my question, it seems like every week or so I will have one part off my body causing me grief and then after about a week or two it is just gone and then some place else will start up and then stop after a couple of weeks. Is this common for Lupus to act like this.


Thank you so much for any answers. I don't see my Rheumy until Sept.


Twinks confused

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 7/30/2012 10:46 PM (GMT -6)   
HI Twinks,

I feel like that a lot. Sometimes its is my hips that hurt really bad and then it might be my knees. Then my hands. Right now when I am sleeping my arms and hands are falling asleep and get really stiff and sore. I get headaches off and on . The fatigue most days is almost unbearable. I never have a good day where I don't feel like something isn't wrong.

However, I wasn't always like that. I've been in major flare since around November and had to quit work because of it.

Maybe you could call your doctor and ask to be put on the cancellation list and that way you may get in sooner.

Hang in there. I know it is frustrating. Just take it one day at a time and rest as much as you can.

Hugs,
Mary Ann

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 7/31/2012 8:43 AM (GMT -6)   
It's fairly normal for different parts of the body to be affected on different days.

However, I'm disturbed by the long time between appointments that your Dr is doing. Usually when we are first diagnosed they see us every month or 6 weeks to see how the medications are affecting us. May to Sept or even July to Sept seems like a longer period than normal. Perhaps trying to get a sooner appointment to discuss these moving inflammations will put you more at ease.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 7/31/2012 9:35 AM (GMT -6)   
Hi!
It happens alot that way for me, I was dx. in Jan. '05, but recently flaring badly. I laugh that I can't travel, but can enjoy the traveling miseries. Some weeks my blessing is that it's not both hips, or feet, or wrists that are so inflammed I can't bear to use them. They take turns. I saw my rheumy every 3 months for almost two years, and now go every 5-6 months. They have a wonderful patient portal for refills, status updates, dr. concerns, and every pt. is assigned a triage nurse. If I need anything, I just log in and type a note. Hope you feel better soon,
hugs, suetoo
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U, Calcium, Flector patch prn, Ambien and Elavil every night. Advair, Albuterol and DuoNeb inhalers.
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