MLN Membrous Lupus Nephritis

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lupus lady
New Member


Date Joined Aug 2012
Total Posts : 1
   Posted 8/2/2012 3:40 PM (GMT -6)   
 
I was reading some of the posts....I have  to come to my local library for internet, so bare with me if it takes a while for a response from me.
 
I was diagnosed with MLN two years ago....stage V.   According to my nephrologist my kidneys are functioning at 37%.  I guess I'm just wondering what this means?  I've had lupus since I was 16 years old....one of the youngest diagnosed in Iowa City at that time.  I've been treated with chemo therapy most of the time.   I was fortunate to have a baby.....they demanded I abort him, but I put my faith in God....he is 15 years old now and perfect.  I am 43 years old and wonder if I'm going to have to go on dialysis soon?  I've been on it before (when I was 16), but not since then. 
 
I also have gout (just diagnosed 2 years ago) think I've had it for about 10 years.....its pretty severe.  Just assumed it was always the AVN (avascular neucrosis in ankles and knees), but then started to get crystals in my fingers....crazy stuff.  My elbows throb....weird huh.....yep, I always have the strangest side effects.  I try to find humor in my life....
 
My son has been asking a lot of questions lateley and with internet he has been doing his own research....he thinks I've only got like 10 years to live.....I don't think so.....unless I get hit by  a bus or something.  I have a good attitude....usually.....but he got me thinking....maybe I should communicate with fellow lupus people and see what they have experienced.
 
My main concern is how long do I have before I go on dialysis?  I figure it will probably be when I have another major flare up.  If I stay healthy.....I may never have to startt dialysis?  Am I being naive?

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 8/2/2012 5:37 PM (GMT -6)   
Noone can answer the question about dialysis. It really depends on your body. I know people who have been at 12% function for years and have yet to need dialysis. Then other people who progressed very quickly. Take care of you body, take your meds as directed, don't miss bloodwork and dr. apts! Also, ask your nephrologist what he thinks.
Amy
Lupus Moderater


dialysis from lupus nephritis

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/2/2012 5:51 PM (GMT -6)   
My mother has been at 28% for years. She's not on dialysis.

My brother was put on it when he hit 8%.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))
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