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Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 8/9/2012 7:12 PM (GMT -6)   
Well talk about a roller coaster. When I was diagnosed with LUPUS last May my doctor put me on Hydroxychloroquine and prednisone 10 mg. To date I have gained 20 pounds at which point I started taking them. After buying new clothes I got angry and quit the prednisone. But have not lost the weight. Today I hurt all over. My feet are swollen, my knees hurt, my thighs hurt, my arms have little bumps on them from the sun due to my not putting on sunscreen and then the other night I got up to go the the bathroom and ran into a little table and fell on it and sprained my little pinky and it is swollen.

I am so angry about having to go on prednisone again because I will probably gain another 500 pounds.

I'm just venting. Can't even think straight anymore.

Meds I am on: Prozac, Wellbutrin, Synthroid, Ambein, ativan, aterax, hydroxyclorquine, folic acid, gabapentin, oxycodone, celebrex, Flexeri, omeprazole, stool softners, Senna laxative, Vitamin Code for Women....I think that's all. "WHEW".

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/9/2012 7:45 PM (GMT -6)   
The prednisone is needed to help with the inflammations. Unfortunate it's a two edge sword. Can you take a fluid pill? I get bloated when on it, too.

Okay folks, those who take prednisone let's help with the tips on weight issues.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 8/9/2012 9:58 PM (GMT -6)   
Prednisone (and Lupus itself) are known to cause **chemical changes** to your body metabolism so that extra carbs are stored as fat. Also, your cravings for carbs increases...and so does your desire for "comfort foods" which are often carb & sugar heavy.

If you are very careful and don't eat any bad carbs and limit your consumption of good carbs to a bit less than the daily recommended amount, and try to keep moving (ie even if it's walking to the mailbox) you will have better results controlling the weight. Also drink more water and less non-water drinks.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 8/10/2012 9:10 AM (GMT -6)   
Hi Twinks. Most docs recommend those on prednisone taper down to 5 mg. Also there are "prednisone sparing drugs" that can be used to decrease the amount of prednisone needed. I've been on pred for a few years and joined Weight Watchers 4 months ago. It's a slow process, but I've lost 12 pounds. That still doesn't rid me of the moon face, buffalo hump, or "apple shaped body" fat distribution caused by prednisone. I was in the hospital twice in March during which time the docs had me on 300 mg pred daily. I have been trying to taper my pred since then, but so far I'm only down to 11 mg. My rheumy put me back on Cellcept which hopefully will help me taper to 5 mg....providing I have any adrenal glands left. Twinks I really, really know how much prednisone sux, but if you let this inflammation continue it damages your body. Perhaps a rheumy visit is in order. Take care of yourself Sweetie. Love, Butterflake

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/10/2012 10:29 AM (GMT -6)   
Hi Twinks,


I know how you feel. I gained a lot of weight when I was on Prednisone a few months ago. I'm now off and trying to lose the extra weight.

It is interesting what you said Lynnwood about the cravings. I have them really bad for carbs. I know I shouldn't eat them but sometimes I feel like I am going to go nuts if I can't eat them. I need to be more disciplined. LOL

Weight Watcher's is great. about 5 years ago I Lost 80 pounds and was able to keep it off until I started flaring and had to start taking Pred. I have put all of it back on. smhair

Hugs,
Mary Ann

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 8/10/2012 12:46 PM (GMT -6)   
If you must have carbs - eat fruit or vegetables.

I eat apples -- they satisfy the carb craving, have great "crunch", and are great for fiber as well!!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 8/10/2012 8:20 PM (GMT -6)   
Hi All,
 
     That is a tough one.  When I am on Prednisone, like I am now (10mg per day), I feel pretty darned good, but I do find myself craving certain foods that I might normally resist.  The culprits for me are anything salty and greasy, like chips or French Fries.  I just use will power or switch to eating fruit.....sometimes an apple or banana with a little peanut butter satisfies that craving.  For some strange reason, I have lost my taste for sweets, although I do indulge in chocolate from time to time.  Taking smaller portions of those "sinful" food also helps.  I find that I get into trouble when I play the complete denial game with myself, so having a french fry or two can often be enough for me.

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 8/11/2012 11:57 AM (GMT -6)   
Thank you all for your replies. It helps to know you are not alone in what you are going through. My emotions are going crazy for me as well and I am lashing out at my husband as he says something that offends me. I really don't think he understands exactly what I am going though and does not really show his concern which hurts me. I am very touchy these days.

Does this happen to any of you or is it just me.

Loads of love, Twinks

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/11/2012 3:25 PM (GMT -6)   
For some reason our emotions are affected by lupus, too.

I was just diagnosed with major depression disorder and placed on paxil. I had no idea I was depressed, just moody.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 8/12/2012 8:22 PM (GMT -6)   
Hi Twinks,

It happens to all of us, not just you. When I get frustrated I find myself taking out my feelings on my husband. He is usually very understanding, but sometimes his calmness drives me crazy!!! I really don't think he understands what I am feeling inside of my body.

Laura
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