10 Year Old With ANA Titers of 1:5120

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New Member

Date Joined Aug 2012
Total Posts : 1
   Posted 8/10/2012 10:18 PM (GMT -6)   
Looking for anyone with a similar situation for help.  My 10 year old daughter was taken to the pediatric rheumatologist for ankle pain (her 14 year old brother has arthritis that is thought to be a spodyloarthropathy due to HLAB27 +).  He didn't find anything significant upon physical exam, but her initial blood work came back with ANA titers Positive at 1:2560.  They said that was very high and they should follow her.  When we returned 6 months later I asked them to retest the titers in case it was a fluke thing and they came back at 1:5120.  She has had no other positive results in her blood, including the antibody tests with the exception of being HLAB27 + also.  She does often have flushed cheeks and 2 years later is still constantly complaining of ankle pain.  Now she has back pain that is keeping her up at night and she complains all the time. :(  This has been going on off and on for several months but has worsened in the last couple of weeks.  She does have flushed cheeks a lot and rashes, but not a butterfly rash.  Any advise or help out there?  We were just at the Drs. a week ago and they don't tell me anything. Ugh...

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 8/11/2012 3:22 PM (GMT -6)   
The only positive for me was the ANA titers, pain, and red face. Not everyone has the butterfly shape rash.

Are they starting her on any medications? Plaquenil and predisone are usually the first medicines they give.
When life throws you lemons....
Pick them up and throw them right back at them! :))
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