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Lupie girl
New Member

Date Joined Aug 2012
Total Posts : 17
   Posted 8/12/2012 12:50 PM (GMT -6)   
Okay so I am new to this but I really need some answers! I've had lupus since I was 5 and never have I had this problem. For the past four days my legs have been so itchy it's unbearable! There is no rash at all, they get tingly and burn on top of the itching. I tried Hydroxizine and benadril. Finally after my second trip to the Emergency room, they gave me solumedrol, it took a little while to work but the itching finally stopped. They also increase my prednisone from 5mg to 20mg. I'm just afraid that the itching is going to start again! HELP!

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 8/12/2012 3:40 PM (GMT -6)   
Sounds like a nerve reaction. I get those on my arms. I have to bath in cortisone cream and take two benadryl.
When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Jul 2012
Total Posts : 54
   Posted 8/13/2012 10:32 AM (GMT -6)   
Lupie girl...have you ever been tested for Sjogrens? It is a possibility. I take 4-1000mg of fish oil, 3 1300mg. of Evening in Primrose and 2-2000mg of vitamin D. You might have your doctor do a DHEA test to see if you are low. All of the above must be approved by your doctor and your pharmacist can tell you if any of the above will interact with the drugs you are taking.

It does help to rub oil on your legs, arms and face at night before you go to bed. I use a blend of virgin oil oil, primrose, vitamin E. This helps a lot for me. I also try to think about the itch flying into the air and never coming back. If i don't do
this it gets in the way of my life. I do everything possible to live my life to the fullest and keep the bad stuff down to a rumble. Attitude is everything! Good Luck!

Lupie girl
New Member

Date Joined Aug 2012
Total Posts : 17
   Posted 8/13/2012 4:42 PM (GMT -6)   
Angelsway...I haven't but I have to go to my rheumatologist on Friday! Thanks for the tip!

Forum Moderator

Date Joined Jun 2006
Total Posts : 1650
   Posted 8/15/2012 10:27 AM (GMT -6)   
Hi Lupie girl. I often get severe itching. My doc told me to take lukewarm baths and use as little soap as possible. Try to use the soap only on the icky spots and don't use any on your legs. Aveno Bath helps, as does Neutrogena Calming Cream. I too often use benedryl. I hope you get some relief soon. Love, Butterflake
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