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Lupie girl
New Member

Date Joined Aug 2012
Total Posts : 17
   Posted 8/13/2012 5:40 PM (GMT -6)   
Okay since I was five years old I have had the lupus rash "butterfly" rash on my face, arms, hands, and chest, and sometimes legs. As I get older it gets worse! Since I have grown up with it, I don't know any different. But at times I do get frustrated and embarrassed! The other day I was at Price Chopper and I asked the cashier where the bathroom was and she said "Are you contagious?" I was so stunned I just turned and walked away! cry

Regular Member

Date Joined Oct 2005
Total Posts : 279
   Posted 8/17/2012 7:18 PM (GMT -6)   
That's awful!I'm sorry that they made you feel likea freak. Some people need a censor button.I have the butterfly rash too and I can't seem to cover it far as the rest of my body I just have red specks, almost freckle like.

I'm in the process of being diagnosed. Should have my results of ANA and RA labs Monday.

Have you been dx? How long was the process for you?

New Member

Date Joined Aug 2012
Total Posts : 2
   Posted 8/24/2012 9:33 AM (GMT -6)   
I'm new here and have had the malar rash come and go frequently sometimes it was deep red and others just a blush, but yesterday when I washed my face with just warm water because it's very red this time it actually had pinpoint bleeding and hurt, has anyone else experienced this?

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 8/24/2012 9:09 PM (GMT -6)   
yes, I get that usually after too much sun or certain medicines.
When life throws you lemons....
Pick them up and throw them right back at them! :))
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