I agree with lucysgd. :) I have been reading anything I can about this, and the links provided do show a lot of very helpful information. My problem is that what is not included in the Lupus links is information about changing patterns (or mixed patterns) and what it might or might not mean. Even on the net there us conflicting information.
I suppose I am trying to see if the change in pattern might mean that I do actually have something going on. Originally, my primary care doctor said I did not have Lupus because even though I had a positive ANA (1:320 Homogeneous), my ds-DNA was negative. She said that it meant it was not Lupus. Since then, I have been through numerous doctors (ordering blood tests and everything else under the sun), including two dermatologists, two ENTs, a neurologist (and maybe another who specializes in movement disorders soon), two ophthalmologists, and two rheumatologists. This has been frustrating, but for the most part,, I have remained quiet here. There are so many who are worse off than I am.
After the first positive ANA and the negative ds, my dr did send me to a rhuemy. He did a lot of blood work, but it ALL came back negative. To me, that was odd. There were things that should have come out skewed (because of how I am), but none did. Because of this, he said that I did not have anything except a connective tissue disorder called Ehlers-Danlos. I went for a second opinion, and that rheumy said that I did not have ED, but I did have hypermobility. His is the blood work that has the changed ANA. I do not know any of the other results.
After the first positive, then a negative on everything, it was a huge letdown (not that I want to have anything, but I do want to know why I feel the way I do). I have been afraid that this round of blood work will lead me to another dead end. Knowing that I have a positive ANA again and a change in pattern has me confused, but I am not scared-confused. I mostly want to know the general consensus. I also want to know why I went from positive one pattern, to negative and then back to positive, but with a different pattern.
Sorry about being wordy. It is late ad I tend to do that.