Itching, exhaustion Newbie to all of this

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Mia143
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/22/2012 9:11 PM (GMT -6)   
Hello
I am so overwhelmed! I was just diagnosed the beginning of this month, the soonest that I could get into see a Rhumatologist is October 2nd. My doctor even tried calling around to get me into a different doctor sooner and couldn't. I am ready to rip my skin off, I am now taking benedryl or a sleeping aid. This itching is driving me bonkers, it happens usually at night and is all over, so creams and lotions won't help. My hands have been going numb as well, and the worst is feeling lethargic with exhaustion. The only prescription that I have been given is vitamin D, I was told that my D has been depleted and I am extremely low. ANy help would be greatly appreciated! ;)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 8/23/2012 7:12 AM (GMT -6)   
I'm sorry you are feeling so uncomfortable. Sometimes it takes a while to see a rheumy and that can be such a miserable time. Could you ask the Dr who diagnosed you if s/he can give you prednisone or something to bring down the inflammation? (My guess is that the itching is coming from nerve inflammation, that might also explain the numb hand.) In the meantime, try ibuprofen before bed.

How did s/he diagnose you? Generally diagnosis is done by a rheumy as they are the experts in separating one auto-immune disease from another - there are several with overlapping conditions - a gp or internist is just not very well-versed in the auto-immune diseases.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Mia143
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/23/2012 7:21 AM (GMT -6)   
Well, I've been having problems with my hands and I went to the doctors. Because of my strong family history of heart disease I thought there was a problem with circulation and possibly my heart not working properly. My doctor diagnosed me w/reynauds and then called the family cardiovascular surgeon who told her to run more tests. When I saw him he said that when has a patient with symptoms of Reynauds he runs more tests to rule out autoimmune diseases. We believe my mom had Lupus she had all the symptoms but, was never diagnosed. Anyways, I tested positive for ANA and had a homogenious pattern, inflammation in my blood work not to mention other problems with my blood work ;( My doctor wants me to get in with a rhemy asap but, all of the doctors around here are booked until the end of the year.
Thank you for your input ;)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/23/2012 1:39 PM (GMT -6)   
I get the itchy feelings when I've had too much UV exposure. Try putting broadspectrum sunscreen on you when outside or under fluorescent lighting.
I've also found that ice packs seem to numb the reaction but need to be careful with the reynauds, too. Hydrocortisone cream helps me too.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 8/23/2012 5:46 PM (GMT -6)   
My husband went through a season in his life with extreme itching, (he does not have lupus) and the doctor put him on atarax and it really worked. When I have too much pain medication I start to itch and I used his atarax and it worked well for me too. You are supposed to take it at night because it can make you drowsy.

Best wishes for you. I was diagnosed late in May with Lupus and one symptom I have that is driving me nuts is extreme head sweating. Only my head and not the rest of my body.

Twinks

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/23/2012 6:21 PM (GMT -6)   
It is frustrating walking around with sweat in your eyes and hair soaking wet, Twinks.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))
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