Posted 8/23/2012 9:02 PM (GMT -7)
I just turned eighteen. I've had Raynaud's for a long time, I remember the symptoms early elementary school. I only got a diagnosis this year, I had never heard of it, I just thought I had poor circulation. The doctor who tested me mentioned that it's sometimes secondary to lupus. I had blood work, my results came back with an abnormally high amount of some sort of antibody, I didn't quite catch it, cardio lipid I think. I looked up lupus and I have quite a few of the symptoms that I never really paid attention too, I've always had odd collections of symptoms, it's a joke in my family that I'm just a weird one. I have Raynaud's, random fevers (not very frequently, but), photosensitivity, fatigue, rashes on my hands and jaw, the glands in my neck are hard and painful sometimes. I do have depression, could be unrelated though.
I had a second round of blood work done as a follow up, but I came back normal. Apparently I tested abnormal, but they re-tried it and it came up fine. Beyond that, my white blood cells were a bit low, same with a few types of platelets. I believe my clotting time for the "russel viper venom time test" was a bit slow. Anyway, I got a call from the secretary, you're normal, thumbs up. I've kind of been shut out, I'm not high priority anymore. I can't get through to him and my family doctor is away.
Do I already have my answer? I hear Lupus is very difficult to diagnose. I just don't feel like this is resolved.