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NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/30/2012 12:36 PM (GMT -6)   
Went to my cardiologist yesterday to get the results of the months of testing that I had done. He told me I have Pulmonary Hypertension. He is putting me on Lasix and told me not to do anything strenous. He said I need to walk but to stop as soon as I have symptoms.

This is so scary and depressing to me. Just another diagnosis to add to the neverending list. I feel like an invalid. And I don't want to. So, I am going to really work on trying to increase my walking and losing weight. I know that won't cure anything but I'm sure it will make me feel better.

I want to be proactive so if anyone has any tips please let me know.

Mary Ann

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/30/2012 2:53 PM (GMT -6)   
Go slow and gentle in your strengthing regement.
Make sure your doctor know about the plans you have.

Word of warning: until you get adjusted to the lasix plan to hover around the bathroom during the first hour after taking it. :(
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/30/2012 3:16 PM (GMT -6)   
Thanks Joy for the warning about Lasix. LOL

The Dr. told me to walk only half as far as I can so I can make it back home. Right now that is just about going across the street to the mailbox and coming back. I want to try and just do a little bit more at a time. I should have asked him about a walker with a seat that way I could sit down if I have to. I think I will ask him about that next visit.

Well, one more thing to adjust to in my life. As we all have to.

Take care,
Mary Ann

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 8/30/2012 4:28 PM (GMT -6)   
Hi Mary Ann. I'm so sorry about all the problems you're having. It seems you can't catch a break. I've read that pulmonary hypertension is awful and I sure hope that you do okay.
 
As for the walker, I bought a rolling walker online a few years ago when I couldn't walk without one. I didn't want one of the usual walkers with the tennis balls on the bottom. Mine is a cruiser delux by Nova. I currently rarely need it, but it's great to have when I do.  Take care of yourself NanaBee.  Love, Butterflake

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/30/2012 5:22 PM (GMT -6)   
Thanks, Butterflake. I am just taking it one day at a time. It could be worse. At this time I don't need oxygen so that is good.

My daughter in law and I are going to California for the weekend. I need a break. I will get to see my sister too so that will be fun.

Hugs,
Mary Ann

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 8/30/2012 6:04 PM (GMT -6)   
Hi Mary Ann - I don't have pulmonary hypertension, but I got really de-conditioned after a herniated disc problem followed by the onset of my connective tissue disease problems, and they both led to a very long period of not being up to much of anything.  I finally made some progress this summer, and was up to walking 2 miles nearly every day.  This was huge for me, because for so long - getting to the corner (we live in the middle of the block) was a challenge. 
 
It will take time, so be patient.  In fact, patience might be the most important factor.  If you push too hard, you will burn out.  Quit before you're tired, because, like your doc said, you still have to turn around and get home.  I would turn around, and if I made it back to the house without being too tired, I'd walk a little longer, turn back, and repeat, even if it was only another 10 feet - but always stopping before I felt really fatigued.  The neighbors probably think I'm a little nuts - but that steady increase without the anxiety of going too far, really helped me stick with it.   I have also learned (from my husband and our dog) that pace and distance are not the only important aspects of walking.  Enjoying the outdoors, and the nature all around (neighbors, too) is just as important.  They like to stroll.  And just moving beats being settled into the couch or the recliner. 
 
Hope you enjoy a great weekend!!!!
 
Lucy
 
 

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/30/2012 6:43 PM (GMT -6)   
Hi Mary Ann:

I'm sorry that you are having to deal with yet another DX. I have pulmonary hypertension like you do. I just recently had a right sided heart catherization, which showed my pressure levels have improved with the medication that I am taking.

This October it will be 4 years now that I've been on oxygen 24/7. I started out just using it as needed and at bed time. about six months later I had to go 24/7. I have issues with pericarditis and pleurisy all the time, with having those with the hypertension I couldn't go without the oxygen, plus I need it with my VPAP machine at night.

I take 40mg of lasix a day and I also take 25mg of Viagra 3 times a day. They found that Viagra helps lower the pressures in people with PH. I also was doing pulmonary rehab 3 times a week. Starting next Tuesday I will go on the maintenance program at 2 times a week. You may want to ask your Dr to refer you for rehab, you are monitored the whole time, and use oxygen while exercising. Your heart rate and oxygen stats are watched the whole time. I have been doing rehab for 8 weeks and I can say it has stopped my decline, I am not worse with my oxygen stats levels, but I still need oxygen. Between my issues with everything and the blood clot I have in my SVC, my oxygen stats drop as low as 85% and my face turns purple.

If you have any questions at all, please ask away I'd be happy to email you about my rehab information. I hope that the lasix helps and you do not have to go onto any more medication or start using oxygen, please take it slow when you start out exercising and make sure you don't push yourself to hard. I wish you tons of good luck and know we are all here for you.

Hugs,
Barbara

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/30/2012 10:32 PM (GMT -6)   
Thanks Lucy for the ideas on walking. I am going to try to do it that way. I will have to walk at night though because I live in Arizona and it it just too hot during the day.

Barbara, thanks for sharing your story with me. I will probably be bugging you as I go along.

Hugs,
Mary Ann

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 8/31/2012 9:29 AM (GMT -6)   
I used to live in Tucson - so I know about the AZ heat!  I live in Ohio now, but I like walking in the evening anyway.  I avoid the sun, and it's good for loosening up before bed.  The great thing about AZ weather is winter walking!
 
Lucy
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