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New Member

Date Joined Sep 2012
Total Posts : 5
   Posted 9/3/2012 3:28 PM (GMT -6)   
Help help.....
This is what is happening with me now. I know I have osteoarthritis in most major joints. I also know that I am not sick all the time...however, when I have "flares" I am so tired, achy, swollen ....and I do have a rash on my face (butterfly). I have consulted with the rheumatologist....
Last Friday, I was out in the sun all day. Now, my itching has this considered 'normal' with lupus?
The ANA test came back positive. The ANA pattern panel showed speckled pattern and the ANA titer was 1:320. So the rheumatologist ordered the ENA Panel--to which all of the 6 tests done in this panel came back negative.
Is this consistent with the diagnosis of lupus or some other autoimmune disease?

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 9/3/2012 8:10 PM (GMT -6)   
Your symptoms do sound like lupus. But I can't tell for sure because I'm not a doctor. Only the rheumy can say for sure.

Have you read website yet?

Do try to avoid sunlight, fluorescent lights, and halogen lights if you are UV sensitive. Use strong sunscreen and cover up.
When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Jul 2012
Total Posts : 54
   Posted 9/4/2012 9:25 AM (GMT -6)   
Itching can be normal with lupus or sjorgrens. I used to wake up trying to tear my face off. I actually had to put cotton socks over my hands to stop from hurting myself. I starting taking 3 -1300 of Evening in Primrose and 4- 1000mg of fish oil a day. It brought my GLA up and the joint pain and itching is soooo much better. I use Sarna as an external anti-itch cream.
Remember to talk to your doctor and pharmacist about taking any supplements.

One of the most important things is to eat a healthy diet. Look on the web at food that trigger lupus and stay away from them. You can have lupus or sjorgrens and have a negative test on the rest. I was positive until I started with my supplements. Now my symptoms are less and my test are negative.

Lupus and other autoimmune diseases do not go away. Sometimes they go into remission or we are just lucky enough to find something that makes the symptoms less and make things more tolerable. Just remember you can live a normal life.
I always say the" life is a bowl or cherries...but you have to sort out the occasional pitts"

New Member

Date Joined Sep 2012
Total Posts : 5
   Posted 9/5/2012 10:36 PM (GMT -6)   
I just don't understand why all of a sudden (with the 3 weeks) I've developed an intense itch that originates in the back near my spinal column, then it starts radiating outwards. Usually I itch on the upper torso. If I try to 'ignore the itch' it starts to have a burning sensation bad enough for me to go ahead and scratch. There are no whelks, no nothing where I itch at....

Also, if I stay outdoors for more than a hour I start to itch--itching is really bad on my face. I know I've always had an photo-sensitivity when it came to my eyes. It's just been in the last month that my skin has really become photosensitive--especially my face.

My feet are so sore and hurt daily. Also I stay stiff way up into the afternoon hours....and if I do any 'extra' activities I pay for that for several days! This is not my norm....
Is this a flare?

Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 9/6/2012 12:02 AM (GMT -6)   
My definition of a flare - older symptom getting worse rather than same or better - new symptoms appearing and staying for more than a few days. I suggest calling your rheumy's office and asking if s/he wants to see you.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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