It is difficult to adjust to the changing requirements of our disease. So many things change in our lives. Like you , many of the things I loved about
life have slowly become uncomfortable if not impossible for me.
I assume you've tried some of the garments specifically made for extreme sun sensitivities? There are several manufactures these days. Sometimes I find it is the heat as much as the sun that is troublesome, and it is a bit easier with a constant supply of ice water.
Have you checked back with your dermatologist, or possibly consulted a rheumotologist? A rheumy will be able to treat you with other medications to get things back under control -- plaquenil is more for keeping the disease in check than it is for treating symptoms. A short course of steroids like prednisone or longer treatment with something like Imuran, Cellcept, or MTX may be called for.
I hope you find the energy to keep looking for treatment and solutions - don't let the anxiety and/or depression take over. Did you know they are actually symptoms of Lupus themselves? Anxiety/Depression are chemically controlled, it is NOT a case of "mind over matter". Thinking can't make chemically induced anxiety/depression disappear...medication can. Make sure to include these symptoms when you see a rhuemy so they can be treated!
I hope things become more manageable soon, and Welcome to Healing Well!
Lynnwood, Lupus & Sjogren's ModeratorDIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde