Prednisone as needed?

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lucysgd
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   Posted 9/6/2012 11:35 PM (GMT -6)   
I know many of you take Prednisone daily, and would love to be off of it.  I am wondering if any take it for 4-6 days (with a taper - no more than once a month) to knock back flare symptoms?  Having a rough time the last few weeks, and rheumy said I could try doing that for fatigue or pain or both.  Heretofore I've avoided it except while traveling - but it's a huge temptation lately.  I know it's nothing to take lightly.
Any thoughts?   Thanks,
 
Lucy

Lynnwood
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   Posted 9/6/2012 11:42 PM (GMT -6)   
I also take it like that. I've been totally off for about 1.5 yrs now, after years at 15 mg. From time to time a flare comes along and I take 10-12 mg for 4-5 days. That's the guideline my Dr provided, and even with that short course I ramp down like 3 days @ 10 mg, 2 days@5 mg, 1 day @3mg...

Your doctor is the one to ask - s/he is the only one that knows the particulars of your version of Lupus and what other meds you are on, etc. My suggestion is what's been prescribed for *me*, everyone needs to verify with their own Dr before messing with prednisone dosages.

Coming off too fast can mess with your heart and even cause heart attacks! Scary stuff!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
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Total Posts : 14475
   Posted 9/7/2012 8:40 AM (GMT -6)   
That's what my doctor is doing with me now. But make sure to talk to your doctor before changing anything.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

lucysgd
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Date Joined Jun 2008
Total Posts : 675
   Posted 9/7/2012 10:54 AM (GMT -6)   
That is exactly the way my doctor suggested using it.  Good to know it's helpful.  I have osteoporosis, so have tried my best to steer clear of it, at least in terms of regular use.  But when the old flare feeling won't let go - I'm ready to  give it a try. 
 
Do you ever feel "worse for the wear" after coming off the taper?  I have after travel and pred use and when I asked about that, my doc said "well, that's the risk".   Although, thinking about it now - I probably came off too quickly.......
 
Anyway - thanks for the responses!
 
Lucy

Lynnwood
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   Posted 9/7/2012 10:57 AM (GMT -6)   
My Dr has always said -- if you feel worse after stepping down, go back to the last dose at which you felt ok, stick there a few days, then step down in a smaller increment.

That means, if I'm okay at 7 mg, when I step down to 5 mg and feel bad, go back to 7 for a few days then step down again but by only 1 mg instead of 2 - ie try 6 mg.

Gives your adrenal glands a chance to slowly get back in the game!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

lucysgd
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Date Joined Jun 2008
Total Posts : 675
   Posted 9/7/2012 11:06 AM (GMT -6)   
Oh, that makes good sense!  However, I have 5 mg tablets, how on earth do you get 1 mg accurately? 

Lynnwood
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Date Joined May 2005
Total Posts : 7723
   Posted 9/7/2012 11:10 AM (GMT -6)   
lol. Ask the Dr about the 1 mg tablets....!

Those 5 mg ones don't even cut in 1/2 very well...although when I try they crumble enough to maybe get 1/3 of a tablet = 1.7 mg
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

lucysgd
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Date Joined Jun 2008
Total Posts : 675
   Posted 9/7/2012 11:15 AM (GMT -6)   
I don't know what I'd do without this forum! 1 mg tablets - who knew? (Obviously, not me) Thanks, Lynn!!!
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