Choice of Lupus teatments
1
choose to go natural as long as you can once you have been diagnosed - 33.3%
2
start taking prescription medication with possible side effects - 66.7%

 
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lupie84
New Member


Date Joined Sep 2012
Total Posts : 6
   Posted 9/7/2012 8:37 AM (GMT -6)   
I have been diagnosed with Lupus SLE since 2010 with symptoms that began over 10 years ago. Chronic fatigue, headaches, memory loss, depression, anxiety, skin sensitivity, brain fog, numbness in my hands and feet...ect ect. It wasn't til i was 24 that I began to notice a red malar rash forming across my face as well as a "bruise " looking rash across my arms and chest as well as the above symptoms worsening. I went to see a Rheumatologist after the official diagnosis of my blood work and she was really pushing meds. on me. Pred...Plaquinel, some others I don't remember. I was seriously overwhelmed by first of all the diagnosis and second the realization that my life would become a never-ending rollercoaster of drugs and toxic chemical pumped into my body in the name of modern medicine to treat a disease which science does not fully understand yet. It was just too much for me to take. I am not currently able to work, at least full time. I was just wondering if anyone else has decided to do the same thru diet exercise and (CAM) complementary and alternative treatments??? I have had great results changing my diet...very strict but it works! I also take supplements which include...vitamins D,A,B6, DHEA,Selenium,Omega 3&6 fatty acids, I also drink aloe vera juice. there is also a line of products called amazing grass, it is a great supplement for people with lupus. it is gluten free and organic(so no pesticides),that contains a collection of minerals, vitamins, with anti oxidants and tons of fiber...I was also wondering if any lupus research has been done to see if <snip> would be a worthwhile option for fatigue, pain, insomnia...ect.ect for lupus patients?

<Edited per Rule 1. Read rules at www.healingwell.com/community/default.aspx?f=46&m=106997>

Post Edited By Moderator (Lynnwood) : 9/7/2012 9:50:34 AM (GMT-6)


lupie84
New Member


Date Joined Sep 2012
Total Posts : 6
   Posted 9/7/2012 8:46 AM (GMT -6)   
btw, i do understand that in some cases of progressed Lupus a "natural " approach is not always appropriate. I am specifically speaking to the newly diagnosed or anyone with a type of lupus without organ involvement...although any of the things I do would and could work along side any treatment a doctor would prescribe. I can't tell you how many times I see a "Lupie" taking tons of meds , still feeling lousy and then eating a big greasy cheeseburger or large pop...Just doesn't make sense to me.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/7/2012 9:52 AM (GMT -6)   
Please make sure your Dr is informed of any/all changes you make in diet, supplements, natural treatments, etc. These may affect the treatments they are trying to track and it's important to keep them up-to-date.

Also note that while prescription drugs have "possible side effects" so do natural ones, and with the natural options the side effects are not documented.

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

lupie84
New Member


Date Joined Sep 2012
Total Posts : 6
   Posted 9/7/2012 11:29 AM (GMT -6)   
ill take "natural" side effects any day!

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 9/7/2012 12:31 PM (GMT -6)   
Guess you have already made up your mind.....me personally, i would follow my doctors advice. They are trained to deal with lupus and they know how deadly it can be if not treated correctly!
Amy
Lupus Moderater


dialysis from lupus nephritis

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/7/2012 12:43 PM (GMT -6)   
Lupus 84 -

I was not arguing for or against "natural" remedies. Just reminding all our members to use good sense and try to include all the pros/cons of a treatment before deciding for or against it. Talking with your Dr is also important since treatment interactions are not as well-documented with the "naturals" as with the "prescriptions".

And by-the-way -- that "never ending rollercoaster" phrase you used -- well, it isn't a given. Some of those drugs, including side effects, put my lupus into a retreating position and I don't take much anymore. Always did include diet, exercise, and some supplements (at my Drs recommendation) in my self-care plan.

We do have members more 'gung-ho' on complete natural treatments... hopefully they will step forward soon to share their results with you.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

XSusanX
New Member


Date Joined Sep 2012
Total Posts : 8
   Posted 9/14/2012 4:41 PM (GMT -6)   
I have explored natural methods over the last decade because I just cant find any doctor that is willing to give me more than vague answers. There are times I felt really great - vitamin D helped a lot with fatigue but now it isn't helping. Whenever I even begin to feel a sniffle coming on, I begin a regimen of vit. d, zinc, and echinacea, which seems to knock colds right out of the ballpark.

I switched from regular store yogurt to greek strained organic, and throw this in a blender with assorted fruits and veggies for breakfast and lunch. My favorite non-blender sandwich is tomato and mozzerella, sliced fine, with fresh basil and olive oil.

I love fish but have been a little more cautious since the mercury warning. I am not a big fan of massive carb intake, but the economic times we're in has added a little more pasta than I am used to. Cutting down on this doesn't seem to affect the fatigue issue, however... I tried that. I try to live by the credo: "Made in a plant.. don't eat it... Made from a plant... eat it!"
Dx: Athsma, Antiphospholipid Syndrome, Polycystic Ovarian Syndrome, Arthritis, Hashimoto's Thyroiditis
Daily Meds: Synthroid, Spironalactone, Low Dose Aspirin
Daily Supplements: Vitamin D, Acidolphilus capsules.
As Needed Meds: Provental inhaler, Ibuprofin
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