What kind of Doctor did you see? Did you have any kind of rash anywhere? it is NOT easy to be diagnosed. I went to supposedly great dermatologit. He took biopsies of the rash on my both ears. And believe it or not. I had them on my hiney.. ( Sorry for the language.) But its true.. Still after all of that he said I had discoid lupus. I was NOT satisfied with that response/diagnosis. So I kept going back. Hair was fallling out. Joints were swelling. so THEN,,,, ya THEN he decides to take blood work and a uurine test. The next thing I knew he had referred me to the head of Dermatology at the Univerisity of Utah. He diagnosed me just be seeing the tests. and Said it was absolutely Systemic.
All I am sayin to ya is that you have to fight like hell to get answeres but YOU CAN DO IT! Go to a Rhematologist. They will run blood and urine tests to see if the kidneys are involved. So just go for it. Catch it while you can so you can get the proper treatent.
BEST OF LUCK!
Diagnosed SLE since 1995, Lupus anticoagulant, Class 4 Kidney disease, depression, seizures & a stroke.