Inflammed scalp & hair

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New Member

Date Joined Aug 2012
Total Posts : 2
   Posted 9/9/2012 11:42 PM (GMT -6)   

How do you deal with the inflammation in your scalp?  My scalp feels like someone has tried to yank my hair out by the root.  The doctor suggested bags of frozen rice - it isn’t even a decent quick fix.  I have been dealing with this since November of last year, diagnosed myself in May since three doctors couldn’t see that I had discoid lupus.  I have been on the anti-malarial medication for approximately a month and a half (no noticeable signs of improvement yet).  My head feels like something is trying to drill into my brain and my head is reeling.


I have been considering cutting my hair very short but fear what I may end up looking like.  I know it is probably more vanity than anything else but . . . my hair has always been long (it is past my bottom), thick, naturally curly hanging in spirals or ringlets.  I have less than a fourth of the hair I once had and it continues to fall out.  The doctor has said that the patches where I have the most hair loss will come back but most likely be grey.  What is coming back is like fine baby fuzz and the growth of the rest of the hair is weak.  My concern is that what might come back could have curly and straight patches with spots of grey.  (I can just see myself looking like a skunk.  LOL)  I guess my question is, when your hair came back what was it like, did it return to pre-lupus condition?


Thank you for any and all suggestions.




Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 9/10/2012 11:41 AM (GMT -6)   
My hair is coming back curly.

The pain you feel might be from the weight of your hair pulling on your sensitive scalp. Get it trimmed to shoulder length and see if you feel some relief.
Lupus, Fibromyalgia, Glaucoma, Asthma, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

New Member

Date Joined Jun 2011
Total Posts : 14
   Posted 9/11/2012 2:29 AM (GMT -6)   
I had about 1/2 to 2/3 of my hair fall out over a period of about 7 months. And it just stopped suddenly one day. The new hair is definitely curlier and when I let it dry naturally, the old hair is much straighter, and it looks so strange. But the good news is, is that your hair IS growing back! I also didn't want to cut my hair. I had let it grow really long for me, and I was reluctant to cut it also because my face was still round from the steroids so I didn't want to exaggerate the chipmunk-cheek look. But I promise with the thinning, or hair that's falling out- the shorter the better. I went to a really good place (important!) to get mine done- and it was a simple, but great cut and it made me feel fantastic and got a ton of compliments. Let us know if you decide to take the hair plunge :o)
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