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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 9/17/2012 10:25 PM (GMT -6)   
Hey everyone:

I have had a really rough weekend. Not only did my pain levels shoot up, but I have a bug. I started with a temp at 102.6 early Friday am it stayed until this morning. Now I've got sweats and chills, I'm congested and my lungs are burning. I also need some more blood. I swear I'll be a vampire soon.

I have an appointment to see my internal med doc on Wednesday. When we spoke today, she sounds just as sick as I do. She told me she has been ill for 11 days now. That wasn't what I wanted to hear. After seeing her I guess I will know if I'll be admitted or not. Everyone handles me with such kid gloves. Until we figure out why my T4 count is only 5 they would like to keep me in a plastic bubble. Remember the show the Boy in the Bubble LOL.

Anyway, please send some prayers and healing energy this way. I am going to try to go and sleep. Hopefully, I will be able to get a good nights rest. Hope you are all doing better than I am.

Hugs,
Barbara

Zebra2014
Regular Member


Date Joined Sep 2012
Total Posts : 46
   Posted 9/17/2012 11:12 PM (GMT -6)   
My heart goes out to you, Barbara. I wish that I could somehow ease your suffering. As I cannot, I will be sure to include you in my prayers this evening.
My best wishes,
Nina

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 9/17/2012 11:18 PM (GMT -6)   
Thinking of you and praying you start feeling better.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/18/2012 12:14 AM (GMT -6)   
Feel better soon.
gentle hug...
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 9/18/2012 5:29 AM (GMT -6)   
Sorry you are struggeling so much Barb! You are in my prayers. Hugs
Amy
Lupus Moderater


dialysis from lupus nephritis

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 9/18/2012 9:37 PM (GMT -6)   
Hi Barbara Lee,

Warm hugs from the northwest. I will keep you in my thoughts and prayers. I hope you feel better soon.

Laura

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 9/18/2012 10:10 PM (GMT -6)   
Hi Barb. I hope and pray that you'll feel better than you do very soon. Most importantly I hope you get that fever under control! I'm sending all the positive energy I have to you Dear with a big, warm hug. Love ya, Donna

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted Today 12:21 AM (GMT -6)   
Hi Donna, Laura, Amy, Joy, Fran, and Nina:

Thanks ladies for all the prayers and positive energy. I sure have needed them. Saw my PCP today and she said that she's had the same thing for the past 14 days. She said that she has a perfectly working immune system and it took her that long to get better. She still sounded yucky.

She said since I have NO immune system that she expected this to last anywhere from 21-30 days for me. She said it's a wicked viral bug. I'm bringing up paste like green goop. She listened to my chest and said no pneumonia at this time. However, I sound like I may have bronchitis. She decided not to give me antibiotics at this time. Said if I not better by next Wednesday to come in and be seen again. Of course, if I get worse to be seen right away. They are worried about antibiotics because last infection I had it took 30 days to clear it up and that was using 3 different IV antibiotics.

Also, saw my cardiologist, he's still trying to figure out if I have an issues with tachycardia or an arrhythmia that's serious enough to make me stop breathing. On an off topic subject, hubby's family are getting together for Thanksgiving. Well, it's a 12 hr drive for us and hubby doesn't want me flying. Also, our daughter doesn't get off from college until the day before and has to be back Sunday. Well the way I am now there is NO way I can travel. However, I feel bad because I've been sick all summer and we couldn't go the two times we planned. I know my in-laws aren't very understanding when it comes to my health. So I thought my daughter an I could spend it here at home and hubby go to his parents.

Well, my daughter called her Dad yesterday, frantic, apparently if I am as sick as I have been over the summer, she's afraid to be left alone with me. Her finding me nearly dead last June 5, 2011, has really affected her. I was so upset, I NEVER meant to upset and worry my girl. Hubby said, I have to understand she was watching me die before her eyes. She did call 911 that morning, but she froze and couldn't talk to the operator. Hubby, had to do that.

I just so hate this disease, my daughter was traumatized over it, and my spouse can't go places, w/o worrying he's gonna come home and find me dead. The guilt I'm feeling right now is HUGE.

So please keep the prayers and positive energy coming my way. I need it desperately. Hope you are all well and having low pain. I'll keep you posted.

Hugs,
Barbara

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted Today 9:50 AM (GMT -6)   
Hi Barbara,

Sorry that you are feeling so sick. I will be praying for you for a quick recovery.

I can certainly empathize without you about traveling for 12 hours. My husband, too, has been talking about going to his parents for Thanksgiving and I think it is at least 12-14 hours away. I'm not looking forward to it.

Is there anyway you could lie down in the back seat while traveling so you can rest? I know I always bring a pillow and blanket when we travel so I can sleep when needed.

Also, try not to worry about Thanksgiving now. You need all your energy to get better from what you have now. Hopefully, you will feel better by then.

I'm so sorry your daughter has been traumatized by this illness
I know it is hard for our loved ones to see what we have to go through sometimes. I know my grandchildren are always asking me "Are you better now, Nana", "You aren't sick anymore?" They are always hoping for the best. Helps me keep on the positive side too, because I don't want them thinking I am sick all the time.

Take care of yourself, Barbara! Try to rest and just relax.

Hugs,
Mary Ann

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted Today 10:38 AM (GMT -6)   
Hi Barbara, Thank you for the update. I have been praying for you and hoping to hear that things might be improving. Glad the doctor is keeping an eye on the whole situation - helps when the docs have first hand knowledge of the "bugs".
Please just worry about getting better right now. Thanksgiving will happen later and you can deal with those issues when you are feeling better. You must do what is right for you and it sounds like your husband and daughter are in total agreement on that so don't worry about anything else. Maybe the three of you can have a quiet holiday season this year and aim for a bigger get together in the spring or next summer when you are feeling better. It is hard, we are sick and then we are plagued with guilt for being sick. Seems rather unfair! Just rest for now and you will start feeling better. Once you feel better there will be time to tackle something new.
((HUGS))
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted Today 3:50 PM (GMT -6)   
Hi Fran:

Thanks for the kind words, I need to be reminded that it's not my fault I am sick. I just want to be well so badly, and I know my in- laws don't even know the half of it. Hubby and daughter do not talk about my issues except with my Docs. Last year when I was rushed to the ER and ended up on life support neither one of them contacted my family or my hubby's family. They knew I was in critical condition, they Dr out right said I may not live through the night. I just don't understand why they don't speak up, I wonder if it's cause they're ashamed of me.

I feel like I have fallen off the cliff again back in 2010 I was unable to shower w/o hubby's help by fall of 2011 I was back to being able to do that. However, since this past August I am once again unable to shower on my own. I need assistance in most stuff I do. My breathing has gotten so bad again.......I just wish well you know. Anyway, thanks for the encouragement and prayers. I hope you're doing alright Fran. Take care and thanks again.

Hugs,
Barbara
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