Thank You very much for the information, great to know that there are people who I can share what I am going through. Also get some advice
I am going to meet my Rheumy with the ENA report, at which time I would ask about the Plaquenil. Well I might see how it goes with 8 mg of Medixon (Medarol). At present I only have few symptoms. Most discomforting being daily headaches. They are under the eye and sometimes top of the head. I am not sure if they are migraines or any other type. Given that I have APS, it well could be migraines. But I have come across posts in blogs about headaches being related to Lupus.
I don’t feel 100% and I struggle to keep up with day to day activities. I am sure you might have faced days like that with your condition. How do you handle it?
You have said you have been on Medarol for 11 years, was it continuously or in episodes?
How do you handle the weight gain? I was 89 Kg before pred and now 93.5 kg.
For how long do you stick to one dose of Medarol?
33 years, Male