I'm so glad that the Benlysta is working for you. My Rheumy wants me to try it and see if I can get down the amount of steroids I take. They are currently trying to make arrangements so that I can start the medication. Not sure when that will happen.
Sounds like you've done great on it. Did you have any type of side effects? I read that weight gain is a problem with it. That's something I totally don't need LOL. After being on high dose steroids for over 11 year straight now, well lets just say I need to loose weight.
Glad it's working for you, keep us posted on how your labs look.