Round 4 of Benlysta just happened and I am feeling really good. This is the longest time frame that I have had where my body seems free of the Lupus stranglehold. I am actually comfortable calling this remission. I am down to 5mg. of Prednisone and will be lowering to 2.5 mg in another week. Three weeks at 2.5 and then no more Prednisone. What a relief that will be! So far, this new medication is working wonders for me. I will have my first set of labs in November. That will be the tell-tell sign for me. If my white counts hold and liver panel holds, I will be okay....at least for now. The other big change I made was cutting back my teaching schedule to 4 days a week. Just having that extra day to recover from the stressors that surround my teaching job has also helped. I would also love to hear from other folks who are taking Benlysta.
Laura aka Oreo