Weird symptoms :/

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kaitlynn elizabeth
New Member

Date Joined Mar 2012
Total Posts : 17
   Posted 9/26/2012 7:02 PM (GMT -6)   
I've been having numbness and tingling of my hands and feet mainly fingers and toes since June.
Now I'm starting to experience what feel like weird electrical through my head and torso that tend to cause either sudden faintness or a general light headedness. Sometimes it makes me nauseous as well.
Blood work still shows the lowest positive Ana levels, gram stains are normal, but my muscle enzymes came back elevated?
Don't know what any of this means.
What are these symptoms? I've read they can be common with ms so nownim worried about that. And what could e elevated muscle enzymes be?
So confused and never get relief:( help me!

kaitlynn elizabeth
New Member

Date Joined Mar 2012
Total Posts : 17
   Posted 9/26/2012 7:06 PM (GMT -6)   
Oh, and a vibration/fluttering feeling below my right rib cage. Started two days ago?

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 9/26/2012 7:57 PM (GMT -6)   
Hey Kaitlynn...

Have you been to see a neurologist? Sounds like that should be your next step in figuring this thing out. Sorry you haven't had any answers showing in your bloodwork so far!!!
Lupus Moderater

dialysis from lupus nephritis

kaitlynn elizabeth
New Member

Date Joined Mar 2012
Total Posts : 17
   Posted 9/27/2012 12:57 PM (GMT -6)   
i saw the neurologist once so far, he sent me for an EEG, which from calling the office I was told the results were normal, but i definitely dont feel like i sleep normal, as my boyfriend tells me of these crazy things i do in my sleep such as violently shaking, screaming, gasping for air upon waking up, looking terrified whilst asleep, waking up from these episodes sweating and in pain having no recollection of any of it. Constantly tired and falling asleep during the day =/

So the suggestion would be to make an appointment with the neurologist about these symptoms?
it was so bad last night I had to leave my class early, i really felt strange and like i was about to pass out.

Regular Member

Date Joined May 2012
Total Posts : 277
   Posted 9/27/2012 1:15 PM (GMT -6)   
I would suggest that you see the neurologist, and that you see if you can have a sleep study done. If you are doing these things in your sleep, they need to see it and monitor it to see what it is.
UCTD (suspected Lupus) and probably Fibromyalgia.... still going through the tests and all that. Hypermobility is also a factor. Also have migraines, anxiety, depression, eye issues,...etc

Frequent lurker... Part time poster.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 9/27/2012 6:51 PM (GMT -6)   
I agree a sleep study is something I'd be asking for ASAP. Also I would try to get in to see the Neurologist ASAP too. I hope they can find out what's causing your symptoms.


Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 9/27/2012 8:19 PM (GMT -6)   
It almost sounds like night terrors.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Sep 2012
Total Posts : 46
   Posted 9/28/2012 7:01 PM (GMT -6)   
Hi, Kaitlynn -
Like the others who have responded, I want to encourage you to see a neurologist, and perhpas a different one?
this summer I joined an (in person) Lupus Support Group, and at least three of the members have had lupus affect their Central Nervous Systems. I know that sounds scary, but ALL of them have made the most miraculous recoveries. I am in awe of their courage and strength.
I wish you the best possible outcome!
Best regards,
Diagnosed with SLE 2010; MCTD 2012
Medications: Plaquinel (300 mg); CellCept (1,000 mg)
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