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New Member

Date Joined Sep 2012
Total Posts : 5
   Posted 9/27/2012 4:14 AM (GMT -6)   
Hi there. i am still awaiting my diagnosis from Rheumy but he seems to think I have SLE. It started at end of July this year and was a complete body rash on both legs , front and back as well as trunk area, buttock and fronts and backs of arms... I am weaning of prednisone but have been on it for about 5 weeks.. How long typically does a flare up last and if i stop prednisone will my rash come back, as i am already feeling a tingly sensation in the areas it started...which are now scarred with purplish pigmentation marks... I am so frustrated and depressed by my looks now... any comments would help!! Thanks Amanda

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 9/27/2012 11:53 AM (GMT -6)   
If your rash comes back he will up the predisone for awhile then drop it down again.

You can buy some undereye makeup to cover up the spots if they are not open. My mother uses undereye make up to cover her bruises when she walks into something. She has a blood condition where she bruises easy.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 9/27/2012 5:54 PM (GMT -6)   
Sounds like you may have to see your Rheumy again and he/she may need to increase your prednisone again. I would also ask them about starting you on plaquenil it's usually the first medication used to treat lupus, other than the prednisone.

Wishing you the best.

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