New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 10/3/2012 2:56 PM (GMT -6)   
Hi all,

I have been diagnosed and undiagnosed with Lupus depending on the doctor because I have never had a positive ANA. My present doctor says no lupus because of the negative ANA.

But here is my question, I have a rash, just raised red marks, look like insect bites that itch like crazy. Now I started out this way over 24 years ago. I have read that alot of you are sun sensitive which I do try to avoid, but lately I have some time in a tanning bed at the gym. I know probably not a good idea, but that would be my only real exposure and I don't know if that would count and if any of you that are sun sensitive have tried tanning beds, and have reactions to them. I am going to watch this rash today as it is mild and if it doesn't go away or worsens by tomorrow call my rheumy.

Thanks for any experience you can share.
Debbie

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 10/3/2012 5:15 PM (GMT -6)   
Yes, tanning beds count and are very bad for anyone with any sign of sun sensitivity. Tanning beds can also cause other kinds of rashes.

I would suggest you avoid them in the future -- I bet the rash will go away if you do!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/3/2012 8:48 PM (GMT -6)   
Halogen lights, fluorescent lights, and sunshine are all bad for us.

Even those twisty kind of bulbs (energy savers) are bad. They burn me.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

kayamoon
New Member


Date Joined Oct 2012
Total Posts : 2
   Posted 10/7/2012 3:38 AM (GMT -6)   
Protopic Ointment has been a life saver. After getting my first rash after being diagnosed. My face had raised red splotches on cheeks, across nose, chin and forehead. I was horrified as I had never had bad skin and this appeared in a matter of two days and within three weeks of being diagnosed and put on Predisone and Plaquinil.
I started applying fresh aloe vera gel straight from the plant all over my face in the morning and evening. I then applied Protopic ointment on the right side of my face at night. I was afraid to make the rash worse so I tried the right side of my face first to see the effect. Within a day the raised red rash had flattened and faded a bit. The pimples near my nose started to dry up and my chin started to peel. As this happened the left side of my face untreated started to worsen. Then next day I started applying the aloe and protopic ointment on the left side of my face and within a day the same thing happend. The redness decreased and the raised red patches flattened and the redness decreased and started to dry and peel. The next day I tried applying the same thing to the rash on my back and chest. After applying the aloe and then the protopic ointment I went to sleep that night. By the middle of the night I woke up with my back itching. I had a look and low and behold the red rash on my back had started to dry up and peel and the redness had decreased.
It has been a total of three days since I started this regime and things are improving rapidly. I still have a bit of healing to go but It looks like within a few more days the rash on my face should be almost gone.
I am grateful since being diagnosed with Lupus recently has changed my whole life. To go from an active healthy life with great skin to red horrible rash and being put on steroids for this flare, my head is still spinning.
I was hospitalized for a collapsed lung when I was diagnosed with lupus SLE. I was an active flight attendant with a busy life and great skin. I had severe fatigue and weight loss but no other lupus symptoms. I had a small sore on my back that the doctor did a biopsy on while I was in the hospital. They initially thought Discoid Lupus but after looking at my blood work diagnosed SLE and put me on 20mg Predisone and one and half tabs of Plaquenil.
After two weeks I woke up with shortness of breath and was told to go to the hospital where I was admitted for inflammation of the lining around my heart. My dose of steroids was increased to 60mg a day and within three days the rash started. I have healthy heart, lungs, kidneys etc. but lupus is laying antibodies on my kidney to start damage, hence the steroids being used. My doctors have started to reduce my steroids to 40mg and within a week they plan to reduce to 20mg until I am out of this flare. The inflammation around my heart thankfully has not caused any damage and is being reduced with tylenol every four hours. I have also thankfully gained weight as I was down to 106.. I was always thin my whole life but this was way to thin. I am now up to 115 and looking healthier.
I am hopeful and grateful to be finding things that work and improve my skin and fatigue pretty quickly.
I also take the following vitamins and my energy is doing really well.
Fish Oil twice day
Calcium, Magnesium, D3 combo twice a day
B12 with folic acid (liquid) once a day
flaxseed oil tablets twice daily
iron once a day
biotin twice daily

I only eat organic chicken, fish, no red meat or pork. No processed food. If I cannot spell it I dont eat it.
I use only natural face wash and vitamin e oil for face. I even switched my makeup to mineral only no more MAC or drug store makeup, to many chemicals. Whole Foods is a good place to find natural skincare products and makeup. They also have hair dye that is totally plant based and sunscreen without a lot of chemicals. Please do not use regular soaps or skincare products, the chemicals are terrible. For a mask I make avacado and put a bit of flaxseed oil from the tablet and mash it together and put on my skin, then wash off with cool water.

I also bough myself a Nutrabullet from those infomercials. It has been great as it allows me to have a lot of vegetables and fruit without having to eat all that daily which can be hard. I make combo's of pineapple, kale, strawberries, raspberries, apple cider vinager, celery etc. throw it all in with pure water and it turns it all into a drink. It makes it really easy to have lots of veggies and fruit without having to eat it all you can just drink it which is easier and you can make it and take to work.

Considering I have only been diagnosed for about a month I am doing pretty good. I am in a flare but using modern medicine along with natural things to help keep me healthy. I am grateful that I have a good prognosis and my job has given me time off to deal with this flare and be stress free. I know this will be a battle but I read alot and dont leave everything up to my doctors. I had to fight them to remove medications they were giving me for things I didnt even have yet. I am grateful that I know what I have so I can be active in taking care of myself.
Good Luck everyone
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, July 19, 2018 10:27 AM (GMT -6)
There are a total of 2,983,155 posts in 327,090 threads.
View Active Threads


Who's Online
This forum has 161895 registered members. Please welcome our newest member, lejame.
423 Guest(s), 13 Registered Member(s) are currently online.  Details
81GyGuy, acarined, ashleylynn, UC2016, GoodVibesOnly, Bloodyhell, Hoagie, Bohemond, John T, jronne, dbwilco, dbell, shadowsfall47