Suspected Connected Tissue Disorder

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Worthit
Regular Member


Date Joined Nov 2011
Total Posts : 212
   Posted 10/3/2012 11:39 PM (GMT -6)   
   I've found myself on a new part of HW and hoping to find maybe a few friends and mostly advice. Here we go, I've have been seeing a Neurologist for the past few months to see why I have numbness/neuropathy in my feet/legs. I need this done before I can get major surgery done on my feet. I've had problems with aches,stiffness,circulation. The joints in my whole body have always bothered me and now at 37 Im like the Tin Man. I cant seem to ever get loosened up and my joints pop all the time. If I sit too long I have to get up and stretch and move. I have been diagnosed with osteoarthritis but I've wondered why this is so bad. When I get up in the mornings I have to literally fight to get moving. It eases after the first 1-1/2 hr. but still fighting. Anyway my Neuro is sending my BW to the Mayo clinic to be analyzed and should know in a couple weeks.
   In the meantime I am researching this and Im overwhelmed. Are these symptoms anything that are associated with CTD's? I didnt even tell my Neuro 1/2 of what Im telling now so your input would mean alot!!!
                                                           Thanks to everyone who took the time to read!!!
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 10/5/2012 10:05 AM (GMT -6)   
I'm not sure what your symptoms mean. I'm glad that your doctor is having someone else look at your bloodwork.

The best doctor to see if you suspect any type of connective tissue disease would be a rheumatologist. Have you seen one? If not, I would recommend seeing one.

In the meantime, try not to worry. Wait until you get your test results back.

Hopefully, some one will post back to you that is more knowledgeable than I.

Hugs,
Mary Ann

Worthit
Regular Member


Date Joined Nov 2011
Total Posts : 212
   Posted 10/5/2012 7:41 PM (GMT -6)   
 Thanks for the reply NanaBee! My neuro told me that if the blood work comes back with signs of CTD that he would be reffering me to a Rheumotologist. I was just trying to figure out which symptoms were related to this and which were not. I have alot going on and what I've read about this is mindboggling!!! Thanks again!!!
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 10/5/2012 8:41 PM (GMT -6)   
CTD is not a specific disease.  Overlapping connective tissue diseases cover a wide range of autoimmune diseases with many different symptoms.  I have mixed connective tissue disease which is fairly well defined but many have undifferentiated connective tissue disease which is short for "I don't really know what you have."  Even so, docs will treat an undefined case.
 
Have you been tested for rheumatoid arthritis? 
 
Lupus often triggers terrible arthritis which can attack every joint...mine did. 
 
Depending on what Mayos says you should probably see a rheumy who will look at it differently than a neuro.  Where do you live?
 
Bill

Worthit
Regular Member


Date Joined Nov 2011
Total Posts : 212
   Posted 10/6/2012 10:00 AM (GMT -6)   
Thanks Bsime for the responce. My Neuro sent off my BW to the Mayo clinic Mon. and should hear back about it in a couple wks. I've complained my whole life about joint stiffness to diff. Dr.s and they passed it off I guess. Maybe they thought I was the type that just complained? I have been diagnosed with osteo arthritis and is 1 of 5 conditions that I was granted disibility on. Sometimes I'm not too bad but others I feel lke someone threw baseballs all over my back and joints ache and litterally POP! My Neuro said that if the BW comes back with his suspicions he will be sending me to a Rheumotologist. Im just tired of going to the Dr.s office at this point but will keep going. I already have 5 specialists but I think I would benefit going to a Rheumy.

I live in Alabama and have some very good Dr.s in Birmingham and Huntsville.

Thanks again Bsime!!!
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 10/6/2012 3:57 PM (GMT -6)   
Hope you can get some answers from Mayos. None of this is easy to diagnose. Arthritis, whatever the cause can be so debillitating.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Worthit
Regular Member


Date Joined Nov 2011
Total Posts : 212
   Posted 10/6/2012 8:24 PM (GMT -6)   
I'll post back when I get the results later when the results come in. I'm ready for some answers. I've been diagnosed with so much in the past few years but I believe in early diagnosis.
Thanks!!!
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, June 22, 2018 3:10 PM (GMT -6)
There are a total of 2,974,569 posts in 326,189 threads.
View Active Threads


Who's Online
This forum has 161253 registered members. Please welcome our newest member, A_Warrior's Queen.
316 Guest(s), 9 Registered Member(s) are currently online.  Details
hennaheather, island time, readingmom, sebreg, owleyes, hrpufnstuf, Timnlay, DJBearGuy, brucen36