Partial Seizure?

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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/4/2012 4:42 PM (GMT -6)   
I've been trying to find out more about my weird arm shakings...
 
As I've been researching I've come across a site lupus.us.com...
 
There was mentioned of CNS Lupus and it's symptoms and it sounded familiar to me.
 
I'm wondering if I'm experiencing what is know as a focial seizure in my arm?
 
Do any of you have CNS Lupus? Do you get the shaking?
 
I see my Rheumy in a month and plan to write down how often these episodes happen to me and see what he thinks about it.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 10/5/2012 5:41 AM (GMT -6)   
Have you gotten a apt to see a neurologist yet?
Amy
Lupus Moderater


dialysis from lupus nephritis

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/5/2012 3:52 PM (GMT -6)   
No, I'm insurance and income free right now and I'm trying to live off a tiny savings.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 10/5/2012 6:15 PM (GMT -6)   
How is your SSD coming along? Even though I got approved I won't be eligible for insurance for two years. I have to do Cobra for now. I know how scary it must be without insurance. Is your doctor willing to work with you? Maybe you could just call and ask your doctor for his/her opinion on what might be going on right now.

Hang in there,

Mary Ann

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/5/2012 7:03 PM (GMT -6)   
They've got all of the paperwork. I'm just waiting on the answer. If they say no then I'm getting a lawyer.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 10/9/2012 4:11 PM (GMT -6)   
Funny you should mention this.

I get the hand and arm jerks mostly in the morning. Sometimes I can be sitting in the family room watching the news and holding my cup of coffee and then my hand or arm will jerk and I spill the coffee all down the front of me. Hot.

I don't know if it is Lupus or not.

Anyone else experiencing this type of jerks.

Twinks

bronze475
New Member


Date Joined Oct 2012
Total Posts : 3
   Posted 10/17/2012 12:01 PM (GMT -6)   
Hello,
My younger brother has recently been diagnosed with CNS lupus. Over the last month or so. He has experienced two seizures and inflammation around the brain, he has lost over 60lbs. Does anyone have any suggestion of medication that could be helpful at this stage. or better yet any specialist near Colorado Springs.

SoSt9
Regular Member


Date Joined May 2012
Total Posts : 277
   Posted 10/17/2012 4:55 PM (GMT -6)   
I have not been diagnosed with that type (or any yet), but I also get the jerkings in my arm, hands and fingers. My neurologist have no idea and I have not yet brought it up to my Rhumey. If I remember, I will ask him next week when I see him. If he says anything interesting, I will let you know. :)
Frequent lurker... Part time poster.

Endolymphatic Hydrops, Chronic Insomnia, Asthma (mild), Hypermobility, Depression (remission), Anxiety, OCD, Autism (high functioning), Various Eye Issues, Deviated Septum and Spurs, Migraines, Skin Problems, and Gastric Bypass Surgery

Suspected, but not yet confirmed: UCTD (suspected Lupus), Fibromyalgia, Sjogren’s
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