Hi. I'm 39...being treated for fibro for about 1.5 yrs. Lately having severe flare of symptoms and new symptoms. Rheumy checked for lyme (positive but ID dr said negative) and RA, thyroid, lupus, and whatever else. TSH was normal but 2 wks later ended up in ER for tachy and TSH was 5.1,,, next day was .619(?????). RF is neg. ANA neg. HAve butterfly rash (mild), migraines, eye pain, rapid heart, swolloen hands, joint pain, unbalance, neuro issues..forgetting words, unable to speak clearly at times, cant get out complete thought befor it leaves my brain and the most debilitating fatigue (i get so mad at that) and so much more but cant articulate it correctly right now. I'm on elavil for fibro which I don't think is doing nything. I hav ebeen in ER 2X's in 6 mos for either migraines type headache (more of a vibration) and tachycardia/chest pain. I get different answers from all of thse dr's. It's soo beyond ridiculous what we go through trying to get diagnosed. I understand it's not the label that going to solve anything but it would give me a sense of understanding and completeness that I know can at least be treated.
My question is basically how long did it take for you to get diagnosed? Dis you jump through hoops lik ethis? My husband has no patience and little understanding of why it's taking so many appointments and so many prescriptions and yet still have no answers. I defend it all but I am just as frustrated.