Question about Lupus

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mally
Regular Member


Date Joined Oct 2012
Total Posts : 63
   Posted 10/14/2012 12:10 PM (GMT -6)   
Hi!
 
I am a 25 yr old female. I got dignost with Lupus a little over 6 months ago. My whole face gets red a lot and i am not sure if that is a flare up or not. Because it doesn't look like a "butterfly rash", so i am not sure if thats what it is?

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 10/14/2012 2:00 PM (GMT -6)   
It can be part of lupus - we as a group seem to get red easier than the rest of the world. I generally don't call small, not so troublesome things flares. But if it's accompanied by fever, and cannot be related to you getting hot or being in the sun or in florescent lights of any kind, and you aren't on a med that causes extra light sensitivities...then it might be moving more toward something in the flare category. Maybe an indication that you are doing/eating/etc something that the lupus doesn't like. These things vary from patient to patient - lupus is NOT consistent!

Best idea is to ask your Dr about it -- the Dr knows more of your overall picture than we do, unless you share your medications, activities, other symptoms, etc with us.

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

mally
Regular Member


Date Joined Oct 2012
Total Posts : 63
   Posted 10/14/2012 2:48 PM (GMT -6)   
Hi Lynnwood,

I also have RA and Raynauds diease. I am taking a drug store of meds: Prednisone, Methotrexate, Folic Acid, Meloxicam, Plaquenil, Calcium with Vit. D and Nifedipine. Which I believe the plaquenil is for the lupus and RA.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 10/14/2012 2:55 PM (GMT -6)   
Here is a good site to look up your medications for side effects if you don't have the handout from the pharmacy. It's also good for drugs/food interactions.

/www.walgreens.com/pharmacy/library/checkdrug/selectfirstdrug.jsp
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

mally
Regular Member


Date Joined Oct 2012
Total Posts : 63
   Posted 10/14/2012 3:18 PM (GMT -6)   
Thanks! I also wear sunscreen on my face 30spf. Also there is sensitivitie to the light for the plaquenil. So that could be part of it. So maybe its not a flare up.
RA,Lupus,Raynauds Diease
-------------------------------
I am on: Prednisone, Methotrexate, Folic Acid, Meloxicam, Plaquenil, Calcium with Vit. D and Nifedipine.

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/17/2012 9:47 AM (GMT -6)   
Nomally a butterfly rash is a blotchy looking red rash starting at your cheeks and going over your nose abit like a bird not a butterfly but they call it that for god knows what try looking on google for butterfly rash it shows exactly what its like.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 10/17/2012 10:38 AM (GMT -6)   
The rash doesn't always cover the checks and nose in the specified manner, sometimes is can be a bit bigger or smaller without such a defined shape.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/17/2012 2:32 PM (GMT -6)   
My "butterfly" rash isn't butterfly. It's red blotches all over my face.

Are you using a sun hat to protect your face?
I've found some great sun hats and sun clothes to help me be protected from the UV rays.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

mally
Regular Member


Date Joined Oct 2012
Total Posts : 63
   Posted 10/17/2012 5:11 PM (GMT -6)   
Thanks Everyone,

Its not blochy, My cheeks are red and it goes over my nose...sometimes my whole face is red like a Tomato. so i am not quiet sure if its a flare up. I have googled it and some pictures do look like what my face looks like...just red...and not blochy.
Couchtater, I do have hats...there not sun hats...but i do wear them sometimes. Not a big hat person. thats why i wear sunscreen on my face.

Post Edited (mally) : 10/17/2012 4:14:55 PM (GMT-6)


mally
Regular Member


Date Joined Oct 2012
Total Posts : 63
   Posted 12/8/2012 11:49 AM (GMT -6)   
Hi,

So my face has been itchy alot, i put face lotion on daily. So i am not sure if its the lupus thats making my face so itchy. I don't think i am allergic to the lotion....cause even if i forget to put it on...its still itchy.
RA,Lupus,Raynauds Diease
-------------------------------
I am on: Prednisone, Methotrexate, Folic Acid, Meloxicam, Plaquenil, Calcium with Vit. D and Nifedipine.

SICKOFSULPHITES
Regular Member


Date Joined Aug 2012
Total Posts : 36
   Posted 12/8/2012 12:16 PM (GMT -6)   
You should ware factor 50 sunblock on your face regular,even on overcast days.Even in the UK which is a not very hot climate it is recommended,hope this helps paul

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 12/8/2012 5:42 PM (GMT -6)   
Yes, Sickofsulphates is right i do the same SPF 50 is great for the face and it does help in the sun currently i use garnier sun lotion spf 50 it helps whatever the weather really and doesnt cause itchyness you can even get your doc to prescribe it i heard good luck with that

Danielle

SICKOFSULPHITES
Regular Member


Date Joined Aug 2012
Total Posts : 36
   Posted 12/8/2012 6:13 PM (GMT -6)   
misslupus are u aware there is a roll-on factor 50 avalible on prescription uk?called sunsense

mally
Regular Member


Date Joined Oct 2012
Total Posts : 63
   Posted 12/8/2012 7:18 PM (GMT -6)   
Thanks! i do wear a spf 30
RA,Lupus,Raynauds Diease
-------------------------------
I am on: Prednisone, Methotrexate, Folic Acid, Meloxicam, Plaquenil, Calcium with Vit. D and Nifedipine.

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 12/9/2012 6:49 AM (GMT -6)   
Sickofsulphates, Really no actually i wasnt i need to check it out is it good you say because i havent heard of it yet its good if its based in the uk as thats where i am.

SICKOFSULPHITES
Regular Member


Date Joined Aug 2012
Total Posts : 36
   Posted 12/9/2012 8:56 AM (GMT -6)   
MissLupus it is called SUNSENSE ULTRA SPF50+ it is a roll on type which my kids found much easier to apply and they would actually use it as opposed to lotion which is hard to apply as its so thick,your gp should (although they wont have heard of it prob.)be able to prescribe it for you,hope this helps,anything else just ask away will try to help.paul

mally
Regular Member


Date Joined Oct 2012
Total Posts : 63
   Posted 12/9/2012 10:53 AM (GMT -6)   
Sickofsulphites,
Can you get the sunfense at like a walmart, meijer,target? or do you have to have your doc get it for you?
RA,Lupus,Raynauds Diease
-------------------------------
I am on: Prednisone, Methotrexate, Folic Acid, Meloxicam, Plaquenil, Calcium with Vit. D and Nifedipine.

SICKOFSULPHITES
Regular Member


Date Joined Aug 2012
Total Posts : 36
   Posted 12/9/2012 11:09 AM (GMT -6)   
mally please be aware i am in the UK,may/maybe not available in your country,but no never seen it in shops over here prescription only i think paul

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 12/9/2012 12:08 PM (GMT -6)   
Cheers Thanks
I shall try to get him to prescribe it for me. And thanks if theres anything else then i shall ask.

Danielle

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 12/9/2012 12:10 PM (GMT -6)   
Iv searched for the product online google it seems if i can also buy it online.

SICKOFSULPHITES
Regular Member


Date Joined Aug 2012
Total Posts : 36
   Posted 12/9/2012 12:21 PM (GMT -6)   
Do u not have free prescription Miss Lupus ? no cost from dr. i have at least 6 in cupboard,could mail you 2 too try,please dont think i want your address to stalk anything will post em to ya free of charge!!just cause i like helping people,esp. people with lupus let me know.paul

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 12/9/2012 12:30 PM (GMT -6)   
You know that would be wonderful which part of the uk do you live in though and only if your sure cheers
My address <deleted>

Post Edited By Moderator (Lynnwood) : 12/9/2012 12:45:01 PM (GMT-7)


SICKOFSULPHITES
Regular Member


Date Joined Aug 2012
Total Posts : 36
   Posted 12/9/2012 12:38 PM (GMT -6)   
Miss Lupus will post em tomoz!!u do realise that in london st.thomases hospital is biggest lupus hospital in uk,more consultants than anywhere and antiphospholipid is there speciality!!I live north west england near town called burnley!!roll on might be old stock but will not go out of date!no probs will sort em glad to help.paul

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 12/9/2012 12:42 PM (GMT -6)   
ST THOMASES IS WHERE IM REGISTERED!!!!

They have a special lupus unit i go to there appointments, they made my diagnosis there are truly wonderful there.

Ps. what more do you no about antiphospholid do you have it or anyone in family have it i have lupus yes but i dont no much about sticky blood

SICKOFSULPHITES
Regular Member


Date Joined Aug 2012
Total Posts : 36
   Posted 12/9/2012 12:49 PM (GMT -6)   
Haha good ur registered there.Having researched lupus for years st.thomases always comes up as major centre Dr.<deleted>for example assisted dr <deleted> in research into antiphospholipid,do u know its also called Hughes syndrome after him!!!Nah no one family with it,but my own reasearch has led me to understand it.paul take care

Post Edited By Moderator (Lynnwood) : 12/9/2012 12:45:39 PM (GMT-7)

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