Newly diagnosed

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kozoraj
New Member


Date Joined Oct 2012
Total Posts : 1
   Posted 10/16/2012 2:08 PM (GMT -6)   
My family doctor told me that I have Lupus and wants me to see a Rhuematologist. I already have hypothyroidism and am a type 2 diabetic. This new diagnosis has not sunk in yet. My ANA was negative but the DNA (DS) was really high with a score of 80. My sed rate was also high with a 48. I know that I am going bald, losing much more hair than when I first found out about my thyroid several years ago. I hurt all over, and am just exhausted. I do not get a rash from the sun, but my skin really hurts after being out in it. It will be so tender that I would swear that I must have a slight sunburn.
 
I have heard that it is rare to have Lupus if ANA is negative. At this point I wonder if I am the exception and my doctor is correct or if my ANA was a false negative.
 
Really trying to deal with all the emotions I have about this.......

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 10/16/2012 2:25 PM (GMT -6)   
It is NOT rare to have Lupus without positive ANA. It is fairly common, but not all doctors diagnose the way suggested by www.lupus.org. It says any 4 of 11 symptoms, where the ANA test is only one of the 11. Check the Diagnosing Lupus link in my signature.

A rheumotologist will be able to determine if you have Lupus or not, which is exactly why your family doc is sending you there...do it! ;) Your other symptoms; fatigue, sun sensitivity, hurt all over...should be checked out.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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