Posted 10/16/2012 4:35 PM (GMT -7)
Hello and welcome! There is a thread marked "Lupus Resources" at the top of this forum which is very informative. I am sorry that your brother (as well as the rest of your family) is going through this. As I am not familiar with your area, I cannot recommend any particular doctors, but a good rheumatologist is the place to start. I have systemic lupus, and my rheumy has me taking Plaquenil, CellCept, and Bactrim (even though Bactrim is not usually used for lupus patients, I tolerate it better than other antibiotics). The CNS involvement may require some different meds, as well as (possibly) a neurologist. Hope your brother starts getting things under control and feeling better, soon. He needs a good support group and you are definitely that!
Take care, Fran
Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.