Recently diagnosed with lupus panniculitus

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New Member

Date Joined Oct 2012
Total Posts : 1
   Posted 10/20/2012 8:59 PM (GMT -6)   
Hi, this is my first time posting. I was diagnosed with lupus panniculitis about 2 months ago. Mine started out with a small bruise on my leg that within a month wrapped around my entire calf. After seeing 5 specialists over 4 months, I was officially diagnosed after 2 biopsies. Now I have about 4 hard , painful nodules in both my legs. And they also itch like crazy. I take Plaquenil 2x a day. That has helped with the fatigue, headaches, hair loss etc but nothing for the panniculitis. I am hoping to find some new friends on hear that can shed some light on this rare form of the disease or that I can just vent to. I am a stay home mom with 2 young kids and this has impacted my daily life tremendously. I look forward to hearing from someone.

Forum Moderator

Date Joined May 2005
Total Posts : 7671
   Posted 10/21/2012 8:54 AM (GMT -6)   
Welcome to healing Well -

Lupus panniculitis isn't often mentioned here -- I don't know much about it myself. Hopefully others will see your post soon who know more about it and are better able to converse with you.

Hang in there,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 10/21/2012 4:41 PM (GMT -6)   
Someone was one here recently with it. I don't remember if she's still reading and posting here though.
However, You're welcomed to vent away here. :)
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Jul 2012
Total Posts : 73
   Posted 10/24/2012 8:16 PM (GMT -6)   
recently i found a quarter size bruise on my buttock. sometimes it itches. is this panniculitis, anyone help me please
The offer still stands- John 3:16
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