Far Too Many Headaches

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MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/27/2012 5:40 AM (GMT -6)   
Iv been getting far to many headaches the ones across your eyes this is a new symptom any ideas what could be wrong im still on my tablets i have sticky blood just hope i dont have a blood clot there any one experience piercing headaches with lupus and know what it could possibly be....
 
Thanks smhair

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/27/2012 7:56 AM (GMT -6)   
I get headaches too. When I was first diagnosed I kept a headache going in that same spot.
It's eased now to where it's not there round the clock.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/27/2012 10:46 AM (GMT -6)   
So would you say its natural for lupus paients then? It just worries me as its a new symptom as the internet tells you some scary stuff.

momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 10/27/2012 1:28 PM (GMT -6)   
not sure about if its a symptom, but what I can suggest is to watch what you are eating and when you get them. My daughter and I both suffer from migraines and need to stay away from cheese, chocolate and wine. Try a food diary for awhile and see if any certain foods correlate with the headaches.

I also use something called a migrastick, got it at a vitamin store. You rub it on temples, behind the ears. Smells like eucalyptus, and works on aromatherapy principle. Has been a life saver for both of us.

Hope that helps some.

Debbie

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/27/2012 2:20 PM (GMT -6)   
 
Try this article. It does mention anti-phosphalipid antibodies in the article.
I don't have APA, unless it has crept up since last blood testing.
 
It does mention tension headaches, too. I was very stressed after my diagnosis.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/27/2012 3:41 PM (GMT -6)   
I dont really eat cheese or chocolate it seems to happy when im computer i mean it wont happen just like that normally if i watch tv or go on the computer it happens i guess its not that different from someone without SLE but it can come once a day but not everyday the only difference is its just come all of a sudden im still on my tablets at the moment anyway so i really dont no i hope my brain is not involved. My appointment is 2 weeks away and i cant get seen sooner iv been waiting 3 months for the appointment alot has happened

Do you think i would have to have a CT scan or MRI scan (dont no which one) to see if there is any neurological problems do you?

Thanks

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/27/2012 3:42 PM (GMT -6)   
i meant happen at the start oops

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/27/2012 7:06 PM (GMT -6)   
I need to see a neurologist for my strange shakes I get sometimes, but money keeps me from doing right now.

Make sure to tell your rheumy about the headaches. It could be something as simple as needing glasses for reading. Don't worry until it comes.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/28/2012 8:57 AM (GMT -6)   
I dont have to pay to see my rheumy is that because im based in england

I dont feel blind i can see quite well maybe its actually nothing im worried for nothing but il still tell him.

thanks

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/28/2012 9:53 AM (GMT -6)   
Hey Miss Lupus,

Your headache may or may not be related to your lupus. Lupus patients are known to suffer with headaches. I would mention it to your Rheumy.

Yes, your health system is different than ours here in America. I have lived twice overseas and there is a HUGE difference between what most countries have compared to the US.

Unless, you're having a lot of other neurological issues, I don't think you would need an MRI or CT. But I am NOT a Dr so all I can say is to my past experience. Just let your Rheumy know and try not to worry so much. Stress can cause us to flare, which then could make your had hurt even worse.

Wishing you the best, hope you get some relief soon.

Hugs,
Barbara

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/28/2012 11:28 AM (GMT -6)   
Lol im so silly to get worried far too much iv been diagnposed for four months and already the stress isn piling thanks for your help even so its so nice coming on here :)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/28/2012 4:32 PM (GMT -6)   
I basically freaked out the first months of my diagnosis. I suddenly starting hurting out of the blue last year. It kept getting worse and worse. The more I stressed the worse I felt. The worse I felt the more I stressed. A vicious cycle....

Try to relax and don't fret over every little pain. Pain is a part of your life now. How you deal with it will determine how you feel the pain.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/29/2012 10:44 AM (GMT -6)   
These headaches are across my eyes like i said but have a tendency to make me feel sick.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/29/2012 11:52 AM (GMT -6)   
Try an ice pack on your eyes. If that doesn't help switch to hot cloths.

I never know which one helps until I try it. Sometimes cold sometimes heat.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

MetoYou
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 10/29/2012 1:12 PM (GMT -6)   
Il try the hot one i think the cold will make my head fob thanks for the tip...

Danielle
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