Went to a Bariatric Medicine Institure Surgery Seminar

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kookla34
Regular Member


Date Joined Feb 2010
Total Posts : 31
   Posted 10/28/2012 9:52 PM (GMT -6)   
I Have read a "few" things online. I was SHOCKED that when I attended this that the leader told me that A-Medicare "DOES" cover the cost if you are at a BMI 40 OR YOU fAll under the other category of being a diabetic or 100 pounds overweight. I Was a little suprised to see 1 17 yr old almost 18 yr old there and a few self pay people ... One of my biggest questions was do you operate on Lupus patients. She said yes. We def do. I was taken back and suprised. I know the surgery gas gott3n better, I know its such a HUGE life style change but I life my life in so so so so much daily pain every day. I sleep on my back most nights because it hurts to bad to try and use the headboard to pull me over. Its so painfull. Had my 2nd bak surgery in November 2011. I never got better. .I gained about 75 pounds and got worse. I do have lupus anticoagulant disorder and I know that people can still have surgery with this but I am wondeering wich of you have had the surgery and wich surgery did you choose and why,. Has it helped you? ANY INFO IS GREATLY APPRECIATED! And I plan to have a deep one on one with my long time Rheumy before I am sucked into this. Any help is appreciatted. I am on the wire. Need some help. The quality of life that I have with the excruciating pain is unbearable. I can hardly do anything but lay down. Cant even do simple things like go to costco Thanks guys
I have seen some posts on this so hopefiully you wont mind refreshing my mind. THANKS SO MUCH

Steph

Have had Lupus about or 8 years....Kidenys been in remission for about 4 or 5 years.
Steph

Diagnosed SLE since 1995, Lupus anticoagulant, Class 4 Kidney disease, depression, seizures & a stroke.

Post Edited (kookla34) : 10/28/2012 8:57:26 PM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/28/2012 10:25 PM (GMT -6)   
There was a lady named Butterflake who had bariatric surgery and went into a coma for several months who posted here a few months ago. I don't know if she's still posting here or not. I think there was someone else who did the surgery also and died from complications. They were posting about the time I first came here about a year ago.

Does anyone remember them?

Frankly I'm scared of surgery now. Our bodies are so touchy. I don't think I'd like to risk elective surgery.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 10/28/2012 11:27 PM (GMT -6)   
Butterflake's coma was not really related to her weight-loss surgery...it was more that the gastric by-pass surgery set off a huge and serious flare. However, we did have another member that never really recovered from her surgery with disastrous results.

I know there are now several different methods of doing this; I don't know what method the second woman used.

The "general" rule of thumb is not to risk any elective surgery when you have an active flare - ie when you have lots of inflammation already happening. And to have the surgery approved by your rheumotologist!!! If my rheumy was hesitant, or I was in a flare, I'd re-think the notion several times!

If you use the "search" button, located near the right end of the second blue bar from the top - search for "weight loss surgery lupus" you might learn more from our members.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

SoSt9
Regular Member


Date Joined May 2012
Total Posts : 277
   Posted 11/1/2012 1:23 AM (GMT -6)   
I had Bariatric surgery back in 2004. I do not believe I was showing signs of Lupus at that time, but a lot from that time is sketchy. I recovered well, except for a minor complication of a blockage 11 days after surgery. It dislodged before they had to do surgery to fix it.

My doctor does do Lupus patients. Depending on the type of surgery you have, you may not be allowed to have certain meds (any anti-inflammatory drugs, aspirin, and steroids are off limits for me, for the most part. There are exceptions), so blocking pain becomes more complicated.

The problem with Weight loss surgery is that it is such a drastic change for the body, you have to be prepared for things to happen (nausea, "dumping" and reactions to foods and medications that you never thought possible), but you do adjust and if you weigh the pros and cons, it will help you make an informed decision. I will admit that I felt so much better after I lost the weight. I am not sure if the weight I am starting to gain back is affecting the Lupus symptoms or not. I do think it contributes to it.
Frequent lurker... Part time poster.

Endolymphatic (?) Hydrops, Chronic Insomnia, Asthma (mild), Hypermobility, Depression (remission), Anxiety, OCD, Autism (high functioning), Various Eye Issues, Deviated Septum and Nasal Spurs, Migraines, Skin Problems, and Gastric Bypass Surgery

Suspected, but not yet confirmed: MCTD (suspected Lupus - among others), Fibromyalgia, and whatever he called it.

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 11/2/2012 2:17 PM (GMT -6)   
Hi Steph. I had gastric bypass surgery and when it came time to try solid food (Jan 1, 2011) nothing stayed down. Surgeon sent me for fluids and told me to make an appt to see my gastroenterologist. Couldn't get in right away and went to the ER. Was admitted and caught hospital acquired pneumonia. I was placed in a coma, given a tracheostomy, on a ventilator, hubby was called two nights and told to rush cause I was dying. I survived and was sent to a long term care facility. Due to the coma I have no memory from mid January to March 30, 2011. I was being fed thru an IV pic line. Once home I was on IV pumps a minimum of 12 hours a day. With therapy I gained strentgh and was able to walk, bathe, and do small chores for myself again.
I remained on IV feeding and meds. In other words I did not eat during 2011 and I'm very fortunate to be alive. I had 13 endoscopies until I had surgery to reverse the gastric bypass on Jan 3, 2012. I now belong to weight watchers and although the successes are small I'm still happy to stay on the program.
 
The other woman on this forum who had bypass the same time I had it died 3 days after surgery. I will never recommend gastric bypass surgery for someone who has lupus, but of course it's your decision. Best of luck. Love, Butterflake
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