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einsteinb
New Member


Date Joined Nov 2012
Total Posts : 7
   Posted 11/1/2012 7:44 PM (GMT -6)   
How does everyone exercise? confused

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/1/2012 7:52 PM (GMT -6)   
Right now I do a gentle stroll around the house. I try to pick up things on the floor and do some simple chores as my body allows.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 11/1/2012 9:50 PM (GMT -6)   
Same way I have always but not with the same intensity.  In addition to lupus I have polymyositis and lost 40 lbs of muscle in a week in 2005.  Only through PT and ongoing exercise have I been able to restore my function (I was quadriplegic and unable to swallow) and return to an active life.  It has helped in countless ways with my recovery and the quality of life.
 
Too many focus on their problems and fatigue.  There is a danger of doing too much but many do little or nothing.
 
My exercise routines include regular workouts at my health club, walking, weights, and lots of stretching.  Also, play golf and walk and carry my clubs.  I did tai chi, which is very beneficial, for 5 years but stopped due to knee and hip problems.  Yoga is great but some of the damage done to me by PM makes yoga impractical and painful.
 
Do what you can.
 
Bill

einsteinb
New Member


Date Joined Nov 2012
Total Posts : 7
   Posted 11/1/2012 10:57 PM (GMT -6)   
wowo, Bill... I want to start, but every time I do I end up with pleurisy. I have started out with just 15 mn on the elliptical and still get the pleurisy. I want to lose some weight, (which I know is some due to diet) but exercise would help.

I am just frustrated. I have had lupus for 28 years now. I get arthritis, pleurisy, fevers, fatigue, raynauds, sun sensitivity, fibro, rash, and think that is it.... but, with anything new, I do seem to hurt, till I get use to the new action, but can't seem to stick to an exercise plan, because I end up with pleurisy coming on or I go to the gym and get a cold or flu. I try to wash down the exercise equipment and wash my hands, but I end up sick and it sets me back for 2 weeks and then I try again. It is a cycle, until I just give up.

I don't know... I will start trying again, come this next week. Gets discouraging.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 11/2/2012 7:37 AM (GMT -6)   
Can you walk short distances? Do what you can. Seems like you need to be very cautious and if you do anything it should be very gentle exercise. Sorry that you have pleurisy. Anyone with a lung condition has challenges that I did not have although I had could do almost nothing in the beginning but not due to a lung condition.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

einsteinb
New Member


Date Joined Nov 2012
Total Posts : 7
   Posted 11/2/2012 9:50 AM (GMT -6)   
thanks.... i guess i will start with the slow walk

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 11/2/2012 11:23 AM (GMT -6)   
Yes, start with a walk down the driveway. Only increase by 10% per week.

For instance, if it takes 3 minutes to get down the driveway, and 3 minutes back home, do that every other day for a couple of weeks. Then either increase the frequency (ie walk every day), or increase the time (3*10% = 3.3 minutes out (that would be farther from the end of the driveway) and 3.3 minutes back. The next week if and only if you can do that pain-free, add another 10% to the routine.

Like Bill, I had to slowly work my way back up to something resembling normal. At the end of 2010 I could walk about 500 feet. It took me almost 1.5 years before I could walk 2 miles. But I found it best not to think about a future goal or anything, but each day to do the best I could for that day.

Another way to measure exercise (or any stressful activity) is to only do about 1/3 to 1/2 of what you think you can do. Then, if you don't have any increase in symptoms for a week or two, gradually do more -- this really helps us learn where our individual limits are without the drastic (unhealthy) swing of "work hard, do all I can today; then in bed for 4 days".

Best wishes!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 11/2/2012 11:46 AM (GMT -6)   
My initial exercises were simply isometrics in bed since i was quadriplegic.  it has been a long journey back to some level of fitness....7 years. Now I can do many, not all of the activities I once did .....downhill skiing, golf, and more.  Not easy for anyone with serious disability but it is usually worth the effort and in my case helped to reverse the disease.  Life is good again...different but better than lying on my back in bed.
 
Bill
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