Sounds like things are going well for you with the Benylsta. I have had two doses and my third is due next Friday the 16th. I have to say its been a week since my last dose and I have been miserable this week.
Don't know if I did to much this week or what. I'm still having issues with reactions when taking it. Last Friday I had the itching, but when I got home I noticed I had some chest pain and hubby said my breathing sounded funny. Of course I have breathing issues anyway, so this whole week I've been wiped out, I never cancel appointments with my Drs and I never made any of them this week. I called and left a message for my Rheumy but he has up to 3 days to call me back. With it being a Federal holiday on Monday I'm not expecting to hear from him before Tuesday at the earliest.
I've yet to even begin to cut back my steroids, I just don't know what to think, I'm ready to throw in the towel. Just crawl into my bed pull the covers up and wait to die. I'm just SO sick and tired of being sick and tired.
Sorry about the vent. I hope that you continue to do well with the Benylsta. Keep posting it gives me some speck of hope, I just can't think of how I'm going to over come it all. Hope you have a good weekend.