Lupus or Rosacea?

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Charlotte1989
New Member


Date Joined Nov 2012
Total Posts : 2
   Posted 11/18/2012 1:39 PM (GMT -6)   
Hi guys :)

I was wondering if anyone could help me out?

i have a rash on my face that my doctor believes to be rosacea, but I'm not able to see the deromotologist until February. I'm concerned it could be lupus as my joints and muscles are occasionally stiff and painful (especially in the morning) I've had an inflamed lymph node for over a year, i get hives on my chest in the sun and sometimes when i breathe in my chest really hurts. i've had a blood test for lupus (i'm not really sure what for specifically) and everything came back fine. I've tried loads of creams and have taken Tetralysal (one 300mg pill a day) for about 3 months but there's no improvement. Please see this link to take a look at my rash. This was taken an hour or so after a bath. It fluctuates in red-ness and is often hot to touch. http://s11.postimage.org/wcnmgieqr/image.jpg

Does it look like lupus or rosacea?

Thanks so much for your help, it's driving me crazy!

Thanks
Charlotte

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 11/18/2012 6:28 PM (GMT -6)   
Unfortunately, the answer is Yes. It looks like both Rosacea and Lupus. Even dermatologists sometimes get this wrong. I've heard the only way to tell when blood work doesn't clarify is to treat like it's Roseacea and if it doesn't respond, then treat like it's lupus. Or the other way around.

Could you see a rhemuy any faster than Feb for the dermo? Maybe whoever can see you first would be where to start?
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/18/2012 7:56 PM (GMT -6)   
Meanwhile get some sunprotective clothing and wide brim hats. Stay in the shade as much as possible and away from fluorescent lights and halogen lights. Coat yourself with SPF 50 or higher sunscreen when going out.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Charlotte1989
New Member


Date Joined Nov 2012
Total Posts : 2
   Posted 11/19/2012 2:39 AM (GMT -6)   
Thanks for your replies.

Unfortuntately I won't be able to be referred to anyone any quicker than Feb. It took me 3 visits to the doctor for her to refer me to the dermo and NHS waiting lists are ridiculous.

Sun definitely isn't an issue at the moment, I live in the south of England where it's dull and rainy pretty much every day haha. But if in the rare instance I see some sun, I'll definitely cover up.

Does the butterfly rash always have that bit over the nose? Because as you can see it really only effects my cheeks.

Also, does the butterfly rash get hot or itchy? When mine's really red it almost feels like I've got sunburn.

Everyone thinks I'm being a hypercondriac, even my doctor. All I know is the rosacea treatment isn't working. What started off as small red lines across my cheeks has expanded to massive red patches that I'm struggling more and more to cover up with make up. If it was rosacea surely the antibiotics should have cleared it up by now

Thanks for your help :)

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 11/19/2012 12:49 PM (GMT -6)   
Several years before I was diagnosed with Lupus I started seeing a new family doctor. On my first appointment, she said I had the worst case of Rosacea she had ever seen. She immediately put me on meds for Rosacea but they didn't work. Sometimes people would ask me if I had a sunburn, even if it was in the dead of winter and cold and rainy outside. When I was finally diagnosed with Lupus and started taking Plaquenil, the redness subsided some.

I guess what I am saying is that it is very hard to distinguish between the two. I know how frustrating it is to wait to see a doctor but just take one day at a time and try not to worry.

Can you ask to be placed on a cancellation list, so if someone cancels their appointment you can go then? Just a thought.

Take care,
Mary Ann

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/19/2012 4:17 PM (GMT -6)   
UV light can come through clouds. I've seen people get sunburned on an overcasted day.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

His Stripes
Regular Member


Date Joined Nov 2012
Total Posts : 24
   Posted 11/24/2012 11:59 PM (GMT -6)   
Charlotte,
I viewed your picture and can sympathize. First I will tell you what I have found out that seems to help and then I will tell you how we may be on the bottom step of the same discovery.

My best friend since early childhood lives in Orlando, Fl and is an assistant to a very prominent plastic surgeon. When my patches (cheeks, nose, forehead and chest) showed up a little more than six months ago, I made the assumption that it was Rosacea. I called her and she asked him about it. He told her that Rosacea or not, it was important that I use a cleanser and moisturizer that were extremely gentle and never use a toner. He recommended Cetafil or Seravie. He also told her that if I was having a particularly itchy or painful outbreak to simply treat it by applying milk with a very soft washcloth. He told her that I should NEVER scrub my face or use anything abrasive like a scrub or mask that peels off. All of this has helped.

My Rosacea treatment has not.

I have been diagnosed with fibromyalgia, arthritis, degenerative disk disease, deformity of vertebrae in neck in relation to skull, bipolar disorder, attention deficit disorder and generalized anxiety disorder. I think that is most of the labels I have been given.

I suffer from daily pain in muscles, joints and back which is altering my natural gait and frequently causes a painful limp. The pain is particularly in my shoulders and neck, upper back between shoulder blades, lower lumbar, chronic knee pain and extremely weak ankles, which means I fall often. I have a headache everyday of my life. I have a fever of 99-103 than can last from a few days to a few weeks. I retain water in my hands, feet and ankles till they are unrecognizable. I have gained 100 lbs. in the last two years due to the onset of chronic pain and a severe car accident that left me bedridden for eight months.
The list goes on and on.

How can I have so many diagnosis? Could they all be interrelated? Could this possibly be Lupus?

Although the redness on my face does not extend quite so far down on the cheeks, it does cross my cheeks and is also in between my eyebrows. It matches the large patch of whatever it is on my chest.

Try to care for the skin like I explained above and hopefully both of us will find an answer soon. Lets keep in touch.

Good luck!
"I can't" means "I have given up". "I can't just now" means "I will be able someday". Quote from my daily life with my grandson.

His Stripes
Regular Member


Date Joined Nov 2012
Total Posts : 24
   Posted 11/25/2012 12:11 AM (GMT -6)   
Oh, one more thing. Only lukewarm water for showers/baths or washing your face. The temperature can increase redness and size of bumps.
"I can't" means "I have given up". "I can't just now" means "I will be able someday". Quote from my daily life with my grandson.

kusurfer
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/17/2013 10:59 AM (GMT -6)   
Posting this to every place I can. I just got back results of Lupus. I have all the complaints I have been reading about and thought I must have Lupus. (hair falling out, butterfly stain etc.) Well a few days ago I read an article about low back pain which I have. A research team in (I think) Sweden have found that a bacteria that has settled in the low spine may be causing low back pain, acne, and hair follicle damage. Didn't think much at the time but in middle of the night I woke up thinking about my rosacea, hair loss, and low back pain. They all started at the same time. I do know that my dermo told me that he used to prescribe antibiotics of rosacea but doesn't any more. It does help and they didn't know why. My friend also has rosacea and low back pain. What I would like to do is hear from other people if they have the same symptoms. Maybe our rosacea is caused by this bacteria. And maybe antibiotics for a longer amount of time would help. Haven't talk to my doctor yet and am worried that he won't want me to take too much antibiotics. But the article said that to get rid of the back pain and (acne, which I think is related to rosacea) you had to be on the antibiotics for months. Please tell me if you have had the low back pain too.
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