Lupus-Relocation Advice

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gan7
New Member


Date Joined Nov 2012
Total Posts : 4
   Posted 11/22/2012 9:56 AM (GMT -6)   
Hi I am from India and my wife has recently been diagnosed with SLE as a result of flare up during pregnancy and went thru an abortion. She s suffering from regular flare ups as result of exposure to sun light as sunshine and humidity are intense here throughout the year. She s now starting to feel imprisoned because she s being forced to remain indoors. I am now thinking of probably moving to a country like Canada so that the effects of sunlight would be less. It would be of great help if someone can help me out by letting me know if it would be of any help to improve her condition. Thanks in advance.

omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 11/22/2012 7:10 PM (GMT -6)   
First, did you wife put on any sunblock? Did she wear long sleeves or using an umbrella or wearing a hat to avoid the sun exposure? If not, she needs to start using it. I now reside in Hong Kong and the sun is strong too, and I am advised by my rhumty that I have to put on sunblock whenever I am out.
Second, if you are thinking about the North America or even Europe, like UK, you have to also consider the cold weather which will affect the toes and the fingers (Raynaud's phenomeon), and your wife must be kept warm when outdoor.
I had lived in Canada, United States, and United kingdom before. I think my condition is better when I was back from Canada because the rhumty treatment in Hong Kong is more aggressive than it was in Canada. In Hong Kong, the rhumty is willing to give me Prednisole, while the rhumty in Canada did not (but I am talking about more than 20 years ago).
When I went to the US, I think my SLE gets better. There is no actual prove, but I do think that weather contribute a lot. In Hong Kong, the humidity is high and it could affect the joints. In the US, it's drier, and it helped a lot.
I think, however, another important factor is the use of medication. I started using Cellcept in the US and continue using it in UK and in Hong Kong, and up to this moment, I do not have any flare. Mind you, I am using sunblock when I go out, and try my best to avoid too much sun exposure.
I hope these help.
 

gan7
New Member


Date Joined Nov 2012
Total Posts : 4
   Posted 11/22/2012 8:36 PM (GMT -6)   
Thanks a lot for the reply. And yes she has been using sun block SPF80+ and avoids sun for most of the time. Her flare is trigerred up even if she gets exposed for a few minutes and that is the problem now. And she feels quite comforatable in conditions that are cloudy or cold.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/22/2012 10:41 PM (GMT -6)   
I live in the southeastern section of the USA and the weather is nice for me. Not too hot, not too dry, low humidity.
I have to have cover but I can tolerate small amounts of the sun thanks to the special clothes I've bought on the internet.
There's a company called Coolibar that sells sun protective clothing. I don't have to use as much sunscreen on my body because the clothes cover me there. I just have to cover my face now.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

gan7
New Member


Date Joined Nov 2012
Total Posts : 4
   Posted 11/22/2012 10:50 PM (GMT -6)   
Cheers for the coolbar stuff and yes will def throw lemons back at life. Ha ha.

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 11/23/2012 12:12 AM (GMT -6)   
Some of us (me!) have adverse reactions to too much cold as well as too much heat. I don't know that humidity affects me too much either way, but the sun and the cold are not good.

I would think Canada would be a bit further north than you want to go simply because of the coolness. (I've never been warm visiting Canada no matter what time of year!!)

Maybe someplace like Spain or the middle (north-south wise) of the US would be far enough off the equator to give your wife some relief.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 11/23/2012 5:46 PM (GMT -6)   
Here is a link to an article from the Lupus Foundation on sun and lupus. 
 
 
There are a number of manufacturers that make clothing with sun protection and there are wash in products to give normal clothing sun protection.  There are also hand and body washes that apply an spf15 coating on your hands/body.  I know friends who use some of these products.  Just google "sun screen wash in products" and you will find both types.
 
I personally love Canada but it might not be an answer depending on how sensitive your wife is even though it is farther north than the US.  Most of the population of Canada live in the south near the US border...not much in the north.
 
Bill
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