Test results...please help!!!!

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Kayla_Marie
New Member


Date Joined Nov 2012
Total Posts : 1
   Posted 11/24/2012 11:47 PM (GMT -6)   
I am so frustrated! For the past 6 months I've had so many symptoms of sle, extreme fatigue, extreme joint and muscle pain, sensitivity to light and the sun, fingers get purplish blue when cold....the worst is the fatigue and pain....my dr did an ana, it was positive, she told he everything pointed to lupus. She referred me to a rheumatologist. She ran a bunch of tests c3 c4 anti dna, the c3 was 136, standard range is 90-80. C4 was 36.9 standard range 10-40. My rheumatoid factor was <8.6 standard range <15 IU/ML. My cpr was <0.5 standard range 0-1mg/dl. And my anti dna antibody was neg1:10...what the heck is going on??? My rhemy said no lupus, but based on discoloration on my shins, she says sarcoidodis...i dont feel thats right, my gut says this its lupus, I have so many common symptoms, and no symptoms of sarcoidosis. Idk what to do from here. I cry everyday, I'm so sick of feeling like this. I'm so tired and in so much pain. I don't know what to do anymore! Have any of you with lupus had negative tests?! What should I do from here? sad

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/25/2012 2:13 AM (GMT -6)   
If you go to lupus.org you will find the 11 indicators of lupus. You only need to match 5 of them and ANA is one of the 11.
You can score negative and still have it.
Print off the list and take it to the doctor on your next visit. He might change his mind.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

doodleface
New Member


Date Joined Dec 2012
Total Posts : 2
   Posted 12/6/2012 10:04 PM (GMT -6)   
My sister's doctor said that when it's in remission or a form of, that the test can come up negative.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 12/6/2012 10:13 PM (GMT -6)   
Diagnosing lupus can be very elusive and can take months or even years to get confirming labs. As others have stated you can have lupus but tests can be negative. Welcome to the world of autoimmune disease. Until your labs and symptoms are more conclusive your doctor can't be sure. You should ask what makes him think you have something else...specifically what.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/6/2012 10:22 PM (GMT -6)   
Yes, I'd question the doctor further.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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