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His Stripes
Regular Member


Date Joined Nov 2012
Total Posts : 24
   Posted 11/25/2012 12:04 AM (GMT -6)   
I know that you are not all doctors out there, but it will be over a month before I can see a Rheumatologist.

Here is my list...and how they are being treated.
**Chronic pain in neck, upper back between the shoulder blades, lower lumbar, knees and bottoms of both feet, increasingly worse (stretching, prescript naproxen)
**Chronic pain in shoulder muscles, lower back muscles, thigh muscles and calves, increasingly worse (stretching, heat, massage)
**Frequent muscle spasms in back, calves and arches of feet that are excruciating (massage)
**Frequent locked muscle areas that feel like large knot under skin in arms and back (massage)
**Daily headache that is resistant to all treatment (cataflam)
**Extreme migraines that cause visual disturbances, sensitivity to light, sound, movement and smells (imitrex)
**Chronic fatigue that does not always make me want to sleep, but keeps me from functioning normally, increasingly worse (none)
**Swelling in hands, knees and feet to the extreme to which I feel they may burst (limit outdoor activity while hot outside, only short walks, reduced sodium, diauretic)
**Fever ranging from 99-102 at least 20 days a month, increasingly worse (tylenol)
**Always too hot, horrible sweats, especially with slightest exertion, night sweats (Neurontin)
**Borderline anemic (multivitamin
**Difficulty breathing, feeling like chest cannot hold enough air for a normal breath, pain in chest/lungs, increasingly worse (humidifier)
**Extremely photo sensitive, not just resulting in a burn, but rash as well (no more than 15 minutes in direct sunlight, not at all when overcast, spf 50)
**Reaction to heavy fluorescent lighting such as increased heartbeat (sunglasses while shopping)
**Red, bumpy rash on cheeks, across nose, between eyebrows similar to the butterfly shape (does not respond to rosacea treatment)
**Red, round, raised rash covering upper chest (does not respond to rosacea treatment)
**Psychosis diagnosed as Bipolar disorder. Also have Attention Deficit Disorder and Generalized Anxiety Disorder. (Effexor XR, Lamictal, Xanax, Trazadone)
**Irritable bowel syndrome which includes recurring rectal tearing and hemroids (diet, fiber suppliment, stool softener)
**GERD (Omneprazole)

What do you think? Do I have the ten different diagnosis that I have been given or could they all be interrelated?

Does this "sound like lupus" to anyone. I am not looking for you to diagnose me, I just want to know if I could possibly be looking in the right direction. I am feeling my various doctors are not making the connection.

Please?
"I can't" means "I have given up". "I can't just now" means "I will be able someday". Quote from my daily life with my grandson.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/25/2012 2:09 AM (GMT -6)   
You're looking in the right direction. The Rheumy will be able to connect the dots for you. It does sound like lupus to me, but I'm no doctor. :)

Meanwhile, make sure you cover up from the sun and fluorescent lights. There are several companies online that sell sun protective clothes. I perfer clothes from Coolibar, but they are expensive.
Get a hat, sun screen, and a good coverup like a jacket or long sleeve shirt. Don't go out without long pants and shoes. No more shorts, crops, or sandals.
I cried when I had to give away my capris this past summer. I'm restricted to wearing my shorts in the house now. I even have to wear sun gloves outside :(
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

His Stripes
Regular Member


Date Joined Nov 2012
Total Posts : 24
   Posted 11/25/2012 2:57 PM (GMT -6)   
Thanks for the confirmation that I may be onto something.

Also, I appreciate the advice about photo sensitivity. I hate shoes and am always wearing sandals or flip flops, but I am not outside that much either. Even though my legs are stark white, I do wear capris in the summer. I just limit my time outside and think that is enough. Thanks for taking that thought process further for me.

I hope my doctor's office calls me and finally confirms the Rheumy appointment. She hasn't been able to lock anything in yet and I am not one of the most patient women around. Getting a bit ancy!

Thanks for your response!
"I can't" means "I have given up". "I can't just now" means "I will be able someday". Quote from my daily life with my grandson.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/25/2012 7:17 PM (GMT -6)   
Another thing with having to protect yourself from sun your vitamin D levels will drop causing you more pain. So make sure you're monitor for a drop in vitamin D regularly.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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