about two weeks ago I had been off the Prednisone for 6 weeks. I had been feeling okay and had gotten a boost from Solu-Medrol when I went in for the last Benlysta treatment. Everything started going downhill after that. I began to hurt so much, even in places that I had never had joint pain before. I felt like one ginormous toothache. I was taking Tylenol Arthritis, which barely helped and Tylenol 3 at night to get to sleep. I can't take any of the NSAIDS, since they wreck my gut. But I was still trying to tough it out until this last week. Last week-end nailed me to the wall. I took Monday off from work, which might explain my brain fog on Tuesday....I kept thinking it was Monday. Each day I came home from work and curled up on the couch wishing that I had my pre-Lupus body back. I was getting more and more depressed as the week went on....more pain, joint stiffness, fevers and that old fatigue. I did not want to live like this! I called my Rheumy Thursday night and she got back to me mid-morning on Friday (I had stayed home from work again, because I couldn't even move from the bed). To make a long story short, she put me back on 10 mg. of Prednisone and wants me to continue at that dose until I see her next Friday. By last evening my fever was down and the pain and stiffness had started to ebb. I feel better today....not 100% (but when do I ever :). But I find myself feeling so defeated. I really was hoping that Benlysta would let me come off the Prednisone!!! My Rheumy reminded me that my body loves Prednisone, so I am seeing a life where I will always be on a low dose....not what I wanted, since I am already dealing with bone loss. I feel so frustrated right now. On a positive note, I feel better both physically and emotionally....which is huge, since two days ago I was ready to crawl into a hole in the woods behind the house and let the mountain lions get me (not really, but I kinda felt that way). Thanks just for letting me vent.