Left Shoulder Pain

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 12/4/2012 11:59 PM (GMT -6)   
Hey all, so here I sit it's 11:45pm and can't sleep a bit. I know the benylsta that I'm taking causes insomnia but this is really beginning to get on my nerves.

I tried to have my nuclear stress test yesterday, what a pain in the rear was that. I couldn't handle the IV drugs that they use to speed up my heart. It made me sick and I also felt like i had an elephant sitting on my chest. So they stopped the test and now I have to be scheduled for a left sided heart cath OH BOY. Of course being on blood thinners will complicate stuff big time.

After all my fun in the nuclear medicine dept I went to see my PCM. Told her I am having issues with sleeping and anxiety. I've never had issues with anxiety, I figured the depression that's caused from the Benylsta would probably bother me and it is. I feel like my whole world is spinning out of control though.

I think I have bursitis in my left shoulder and my PCM wasn't comfortable with injecting it, so now I'm awaiting for my Rheumy to call me. Don't have an appt to see him until the 19th. The shoulder pain is thru the roof on a scale of 1-10 it's a solid 8. PCM told me to increase one of my pain meds by another 5mg. So hopefully, that will kick in soon. She also gave me something for my anxiety, but stressed that it's a highly addictive drug and she only wants me to take it on days when I think I'm gonna fall totally apart.

She said no to anything to help me sleep. She also told me NO anxiety meds before bed either. With my complex sleep apnea she doesn't want to cause my respiratory system suppressed anymore than it is now. So I'm gonna go and try to get my shoulder to stop hurting and hopefully, I'll feel like sleeping prior to 3 am like last night. Gotta love lupus, NOT.


Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 12/5/2012 12:38 AM (GMT -6)   
Sorry you're having such a rough time, Barb. I hope the left shoulder pain doesn't have anything to do with the stress test.

Also I hope you are sleeping by now! I had some unusual pain today and ended up sleeping a lot from taking pain medication -- so I'm awake now in the dark hours.

Pleasant dreams,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 12/5/2012 7:58 PM (GMT -6)   
I know that "can't get to sleep" feeling. It loves to dance around my head.

Lately, I've been able to go to sleep earlier (1am). Still working on resetting my clock though.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Feb 2011
Total Posts : 399
   Posted 12/5/2012 8:52 PM (GMT -6)   
Hey Barbara,

Glad you mentioned the insomnia. I am having the same reaction to the Benlysta. I will go to bed and then ten minutes later be up.....hard to do when you are having to get up for work. I felt pretty drained today. Sorry about your pain. Like Lynnwood, if I take pain meds I sleep and then I am up at night!!!!


Regular Member

Date Joined Jul 2012
Total Posts : 73
   Posted 12/8/2012 12:22 AM (GMT -6)   
the same for me. i hate pain meds as they put me to sleep but do not take the pain away! when i wake up the pain is still there but now i'm up all night...ugh
The offer still stands- John 3:16
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 1:27 PM (GMT -6)
There are a total of 3,005,478 posts in 329,227 threads.
View Active Threads

Who's Online
This forum has 161775 registered members. Please welcome our newest member, Rawle.
308 Guest(s), 12 Registered Member(s) are currently online.  Details
Mind body spirit, bluelyme, Fegyduck7, aidanw20, Girlie, Sherrine, Alxander, InTheShop, Everton, elvin, (Seashell), Shayanv