so confused please help

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bon3
New Member


Date Joined Dec 2012
Total Posts : 2
   Posted 12/22/2012 1:06 PM (GMT -6)   
Hello; thanks for reading this.
For over 25 years I have had the same symptoms come and go; not usually lasting for more than 2-10 days and recurring every few months. Now the recurrance is monthly and right at this moment I've been suffering for 6 weeks. Fatigue, pains, aches, reynaulds, memory loss, cognitive problems.. I know are all on the checklist for SLS. I also had epstein barr which can precede lupus.
Finally got more aggressive in seeking tx and I believe these are "flare ups" not new illnesses cus always the same but to different degrees.
Seeing rheumotologist next week; I know he will want more testing.

questioN: recent lab work came back all normal except it shows an ANA of 1:40, speckled.
I am confused because I am getting different info online as what is a "normal" ANA.
Some say 1:40 or less is normal, is that true? I also read one can have lupus even if the ANA does show normal. I read how hard it is to get a diagnosis but think I came across a rhemy who is really forward thinking and will treat for lupus if at least enough info is there
http://www.hss.edu/physicians_lockshin-michael.asp
I have an appt with someone else but am going to try to see him. He's at a prestigious hospital in NYC so probably does not take insurance; keep my fingers crossed.

So what is the concensus on the ANA of 1:40? would that be indicative enough of an auto immune disorder?
I JUST NEED AN ANSWER as I'm sure you all can relate to.
It's terrible; I can't socialize or take care of my kids as needed, everything is a chore and I feel terrible.
Your feedback is most appreciated

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/22/2012 1:57 PM (GMT -6)   
You don't have to have a positive ANA to have lupus because it changes.
You just need 5 of the 11 indicators.

Lupus is one of the most frustrating illnesses I've ever experienced. You never know what will happen next or how you will feel minute to minute.

I'm learning to slow down and going to a psychologist to learn coping skills in dealing with this.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/22/2012 2:05 PM (GMT -6)   
An ANA test cannot, by itself, determine if you have or do not have an autoimmune disease. These diseases present symptoms all over the body, it is the accumulation of symptoms, with blood tests, that lead Drs to diagnosis! (You need 4 of 11 before most Drs will diagnose you -- however other diseases can also have these symptoms! See the link in my signature.)

Various Drs and labs categorize ANA as high as 1:320 as negative. Others say positive if anything shows at all. 1:40 is the lowest measurement possible. (Negative means "normal").

Find a rheumotologist who will look at your entire situation. Most will do this, if you want one who is definitely interested in Lupus, my suggestion is find your local lupus chapter of www.lupus.org and see what Drs participate in the local organization. This gives you a shorter list to choose from.

Try not to stress and worry -- this generally makes symptoms act up!

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

bon3
New Member


Date Joined Dec 2012
Total Posts : 2
   Posted 12/22/2012 2:12 PM (GMT -6)   
thanks so much. I fit most of the criteria for fibromyalgia as well.
the infectious disease dr. said he's certain I have chronic fatigue but did order extensive lab work anyway. I don't believe it's CFS, I believe its fibromyalgia (I have every symptom listed) or lupus

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2607
   Posted 12/23/2012 11:31 AM (GMT -6)   
Bon, I could have written your post word for word a few years ago so I know how frustrated you are. Just take things one step at a time, find a rheumatologist you have confidence in (it takes several tries for many folks), eat well, get plenty of rest, and exercise as much as possible, even if it means a few minutes of walking or stretching every day, and cut out sugar. When you're flaring all that sounds impossible but it does help. Sorry you're going through this.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin 1200mg, synthroid, spironolactone, actonel, niaspan, simcor, lunesta, cymbalta 90mg, norco 10, vitamin D, Calcium, Multi Vit. Fish Oil, low strength aspirin
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