Bon, I could have written your post word for word a few years ago so I know how frustrated you are. Just take things one step at a time, find a rheumatologist you have confidence in (it takes several tries for many folks), eat well, get plenty of rest, and exercise as much as possible, even if it means a few minutes of walking or stretching every day, and cut out sugar. When you're flaring all that sounds impossible but it does help. Sorry you're going through this.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
plaquenil, neurontin 1200mg, synthroid, spironolactone, actonel, niaspan, simcor, lunesta, cymbalta 90mg, norco 10, vitamin D, Calcium, Multi Vit. Fish Oil, low strength aspirin