Im posting on behalf of my 28 year old sister how was diagnosed with Lupus last year. Any opinions would be appreciated.
Here is a quick summary:
December 2011: Very bad arthritis/joint pain, prescribed Plaquenil.
After than that one flare no other Lupus symptoms besides fatigue.
November 2012: Tingling in fingers, prescribed Prednisone. Increased tingling and numbness in legs/feet. prescribed higher dose of Prednisone(60mg/day).
Prednisone seemed to improve her conditions, so she began physical therapy.
December 13, 2012: First Cyclophosphamide treatment. Went well, recovery continued.
December 24, 2012: Has been tapering -10mg a week. Currently at 30mg. Experienced vomiting, severe stomach pain, insomnia, loss of appetite, short breath.
December 28, 2012: Went to Hospital, vitals way off, enlarged heart, kidney complications.
Vitals are now stable after a ton of meds, fluids and rest. Heart and kidneys are getting better.
As you can see things happened really quickly with her. Doctors are not sure what caused the enlarged heart. Could it be a Lupus flare? Was the Prednisone taper too quick?
She is now on 60mg of Prednisone, but the tingling/numbness continues.
Has anyone had experiences like this?
Thanks in advance,