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tenXmom
Regular Member


Date Joined Jan 2013
Total Posts : 62
   Posted 1/3/2013 11:49 PM (GMT -6)   
I couldn't find an introduction folder, excuse me if this doesn't belong in this area, please.
 
My doctors tell me I have AIH, Lupus, RA, Reynauds, and possibly a couple others that I don't think I'll be accepting. I'm currently weaning off of 40mg prednisone daily and will be starting a montly liquid infusion to replace - my rhumy tells me she can get me off of all pills - taking my pills (or forgetting to) put me in the hospital twice last year in liver failure.
 
I'm looking forward to getting to know everybody and hopefully sharing tips & living an almost normal life.

Laura aka tenXmom
AIH - Lupus - RA

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/4/2013 1:22 AM (GMT -6)   
Welcome, Laura.
Your Introduction is fine here.
I've been diagnosed for almost two years and there is still so much I'm trying to learn about this disease. I have Systematic Lupus. So far all it's done is give me aches, fatigue, and protein spills in my kidneys. (Fingers crossed) I hope it never gets beyond that for me.

It gets a little sluggish here at times, but someone is always checking in every couple of hours.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

tenXmom
Regular Member


Date Joined Jan 2013
Total Posts : 62
   Posted 1/4/2013 2:56 AM (GMT -6)   
Thanks for the welcome, Joy
 
I've read a couple of your posts about the 4am sleeplessness - it's pretty common me to still be up at 4, too - reading, online classes, netflix (because there's nothing worth watching after 2am) working, beading, cleaning (not too popular with my husband or kids when I decide to vacuum) .... makes it tough to get up and be productive at work at 9am
 
What I really miss is my brain & personality - I don't care about my moonface, hunchback or beard (six plus years of prednisone, I've never made it below 10mg daily without a AIH flair), well, OK I do kind of but I can deal with it - I really miss who I used to be and I'm going to find a way to get me back.
Laura aka tenXmom
AIH - Lupus - RA

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/4/2013 12:52 PM (GMT -6)   
Yes, I do miss my brain....
My fibro is flairing bad today. I can't stand to be touched or near anybody.
I have to put my laptop on a pillow in my lap to tolerate it today. owwww.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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