sleeping my life away

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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/8/2013 4:50 PM (GMT -6)   
Do you feel like you're sleeping your life away? I feel like I need to get 10-12 hours of sleep a day.
I go to sleep most nights around 1 or 2am except when the insomina hits. I wind up waking up around 12 or 1pm. Once or twice I've slept until 4pm.
I just feel so sleep deprived that I can't wake up early anymore.
 
Today I woke up at 10am (a rarety). I got up walked around the house and looked at everybody bleary eyed. Went back to my room laid down and promptly fell back asleep for 3 more hours. shakehead
 
My pulmologist told me my sleep apnea is fine and under control. So it's not that. I figure it's something to do with my Lupus or my Fibromyalgia.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 1/8/2013 8:15 PM (GMT -6)   
Hi Joy,
 
      There are some days when it seems like I cannot get enough sleep.  I came home from work yesterday at 4 PM and took a nap until dinner at 5:30 PM.  I fell asleep in the recliner reading at 6:30 and I was in bed by 8:00 PM.  I woke up at 6:00 AM to get ready for work!!!  Normally, I sleep only 7 hours a day.  I have noticed that since the Benlysta treatment last Friday that I have been more fatigued and tired.  Lupus usually does that to me.  There are week-ends when I feel like I am sleeping my life away.  I really think that it is what my body needs.  I actually am feeling more awake and energetic tonight.  Hang in there!!!
 
Laura

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/8/2013 9:20 PM (GMT -6)   
I have to tell all of my doctors I need after-lunch appointments. I've tried going to a 9am appointment one morning and I sat there yawning the whole time. I told her I was about to fall asleep on her. The next appointment was set for after-lunch for me. :))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/9/2013 9:16 AM (GMT -6)   
Just out of curiousity Joy, why do you have a Pulmologist moderating your sleep apnea? I have UARS (Upper Airway Resistance Syndrome, a form of apnea) and use a cpap. My Sleep Specialist (that is really what they are called) handles my UARS, not my asthmatic doctor. I guess it could go hand in hand, I mean asthma and all is a form of breathing trouble. It's just odd. You are the first I came across even with family and friends who has apnea handled by a asthma/copd doctor (pulmologist).

But guess what, I have to sleep extra too!
~Moderator - Allergies & Asthma , Alzheimer's~

"The Walking Medical Mystery"

Too Many Allergies / Too Many RXs & DXs

~Medical Caregiver and Doctors Worse Nightmare~

And Doctor's Worse Nightmare

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/9/2013 10:39 AM (GMT -6)   
I have intrensic asthma, several allergies, central and obstructive sleep apnea.
My allergist I had at the time sent me to her for sleep apnea testing. Her medical group does sleep testing and is a distributor of cpap machines. While I see her for my asthma another doctor checks my machine and downloads my report from my cpap. He will send the report to her and she will tell me the results. Together they make any adjustments needed for me.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/9/2013 7:49 PM (GMT -6)   
Joy,

Have you had any labs done recently? I know when my anemia gets bad not only am I tried and want to sleep all the time, but I have fatigue and my SOB gets worse. The lower my hemoglobin the worse I feel.

I like you only do late morning to early afternoon appointments. If I don't get enough sleep I feel worse.

Maybe a call into your GP is in order.

Hugs,
Barbara

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/9/2013 11:30 PM (GMT -6)   
I'm getting a full blood work up and urinalysis at the end of this month with my rheumy. My last labs was in September. He likes to do it every 4 months.
My blood has always been normal level in iron. I'm supposed to be folic acid and D deficent. I'm on 800 mg a day of Folic acid and 100,000IUD of D.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

TXplowgirl
Regular Member


Date Joined May 2010
Total Posts : 66
   Posted 1/10/2013 7:02 AM (GMT -6)   
Not only that but my sleep patterns are off. Im sleeping during the day now up at night. Never used to be this way, Kinda irritating in a way.
I'm In Pretty Good Shape For The Shape I'm In.

SLE, Fibromyalgia, Chronic Fatigue Syndrome, Chronic Anemia, Bulging Discs, Pinched Nerves, Athralgia, Degenerative Disc Disease, Celiac Disease, Endometriosis

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/10/2013 7:38 PM (GMT -6)   
I might have found a non-drug solution.
I found this free online audiobook library (libivox) that has mostly british readers. They read old books like Sherlock Holmes, Pride and Prejustic, and other books. I download it on my computer and listen to the stories. After two chapters laying in the dark I'm out like a light. It's something about British accents that make me sleepy. Don't know why...I love their accents. :)
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/10/2013 10:15 PM (GMT -6)   
Joy,

I hope you are feeling a bit better. I'm glad to hear that you'll be getting labs done.

Just a note a person can have anemia issues w/o having low iron levels. The average person with anemia maybe has it due to low iron, but folks with chronic illness can have it for other reasons.

My iron levels are almost to high, but my anemia is so bad I'm getting about 2 units of blood about every 8 to 10 weeks. Because of my MDS my bone marrow doesn't make enough red blood cells to sustain me. My iron levels are watched closely as too much iron can be dangerous.

Just wanted to give you some food for thought. Make sure your Dr checks your levels.

Hugs,
Barbara

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/10/2013 10:48 PM (GMT -6)   
Ok Joy, I was just being curious. Your pulmologist has more than one specialty I see. I had a former primary like that. I was just surprised hon. You know I hope your idea works. I still enjoy listening to The Shadow, Perry Mason, Murder She Wrote. Yes, I simply gone nuts at such a young age.
~Moderator - Allergies & Asthma , Alzheimer's~

"The Walking Medical Mystery"

Too Many Allergies / Too Many RXs & DXs

~Medical Caregiver and Doctors Worse Nightmare~

And Doctor's Worse Nightmare

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/10/2013 11:15 PM (GMT -6)   
That's okay, SS.
It's actually a large medical group of about 12 doctors. They mostly do lungs, hearts, and sleep disorders.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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