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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2013 9:54 PM (GMT -6)   
I can't remember if I've asked this question before but please humor me and answer it again, because I can't remember the answers... shakehead
 
I've suffer from tinnitis (ears ringing constantly) for many years now. Lately they've gotten even noisier. I'm even getting "clicking" off and on in my right ear along with the constant high pitched "eeeeeeeeeee" in both ears.
 
It's getting very annoying! smhair
 
I've been doing some research on it and found that sometimes people with lupus can have tinnitis also.
 
Do any of you suffer from this aggrevating noise? mad
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 1/12/2013 10:07 PM (GMT -6)   
Hi Joy,

I started getting Tinnitis when I started Plaquenil. The Doctor doesn't think that is possible, but if you carefully read the information sheet on the drug, it is a sdie effect, albeit, not common. I agree, it is very annoying. Mine seems to come and go.

Laura

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2013 10:32 PM (GMT -6)   
I've only been on plaquenil for about two years. The ringing been around a lot longer than that. :(

My mom said for the last few days I've been yelling when I talk to her. I can't tell the difference. She's hard of hearing so if I'm yelling I must be louder than normal.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

tenXmom
Regular Member


Date Joined Jan 2013
Total Posts : 62
   Posted 1/12/2013 11:06 PM (GMT -6)   
My ears have been screaming for years, pre-diagnoses - we moved up from ringing about 2 years ago. I've never been on Plaquenil. My old NP told me it was common with Auto-Immune diseases.
Laura aka tenXmom
AIH - Lupus - RA

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2013 11:59 PM (GMT -6)   
I guess I have another question for my Rhuemy in two weeks. :(
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

tenXmom
Regular Member


Date Joined Jan 2013
Total Posts : 62
   Posted 1/13/2013 12:38 AM (GMT -6)   
It's on my maybe list that I haven't accepted yet but have you looked into Meniere's Disease? I've all but giving up driving because of dizzines and walking down the hall to the living room is like a bumper car ride. Lately I've been waking up in middle of night because I'm dizzy, different from my norm of walking up dizzzy
Laura aka tenXmom
AIH - Lupus - RA

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/13/2013 1:29 AM (GMT -6)   
Sometimes with lupus the nerves in the ears will become irritated (part of our random inflammation issues) and dizziness and/or tinnitus will show up. Mine has always (so far) gone away - once it was about 5 wks, the other time 2 or 3.

Have your rheumy check the inflammation markers in your blood to see if something is going on. Most likely it is lupus itself that is the problem, not another illness suddenly popping up.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/13/2013 1:54 AM (GMT -6)   
I looked up MD symptoms and I'm not dizzy walking or driving. I'm not nauseous. I have woke up dizzy for about 3 minutes a few times. And I don't like to close my eyes and stand still. I feel wobbly a little. I do lose my balance if I have to raise one foot for more than three seconds.

I'm supposed to get some bloodwork this trip to the rheumy.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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