Hi Everyone. Years ago someone on the forum suggested we read the spoon theory and share it with anyone willing to listen. It is on this website: www.butyoudontlooksick.com
It has come in handy sometimes to help folks understand. Also, this may sound odd, but I talk about
my lupus to strangers every chance I get. At the grocery the cashier saw that I was buying pre-cooked east Indian food and he said it sounded good and easy. I replied, "I have lupus, so easy works well for me." He then sincerely wanted to know what lupus was, so I told him. I walking up some stairs holding up traffic and say, "I'm sorry, but I have lupus and can't walk any faster." I want to spread the word about
lupus and I mention my lupus as often as I can squeeze it into a conversation. I feel people need to know.
Chronic illness is a disease that never ends. For me lupus has occasional days which are okay and lots of bad days. For me, severe fatigue, pain, and medications are part of every day. My weight watchers leader knows I was in a coma 2 months and was hospitalized three times last year with pneumonia, sepsis, and a partial bowel obstruction. Regardless, one day she said, "But you don't look sick." I laughed and said there is a lupus website with those exact words. www.butyoudontlooksick.com
Everyone should read it. Love, Butterflake