Not sure what I have??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Jan 2013
Total Posts : 1
   Posted 1/30/2013 2:10 PM (GMT -6)   
I have been dx with Secondary Raynauds, Neuropathy, Fibromyalgia, depression and an undiagnosed auto-immune disorder. I also suffer from IBS and Heartburn daily. I have been put on Cymbalta, Procardia, Gabapentin and Ambien. I feel that I have Lupus but when I can finally get into see the Rheumatologist I am usually feeling a little better. I also do not have health insurance so it is difficult to be able to afford doc visits. I am also on disability and cannot work.
My question is I have a constant low grade fever ache all the time and so terribly tired that I sleep too much. I am currently on Prednisone because I broke out with some kind of rash on both forearms and they itched unbearably. I have had skin issues where prednisone is the only thing that works. There are times where I am so sick of being sick.
I just had some bloodwork done but I keep getting shuttled to either a neurologist or the only Rheumotologist we have in town ( who I cannot stand) or my primary, noone can tell me what is wrong with me!!!  I finally received a letter from my doc on my bloodwork and my ANA test is abnormal- 1:640 Speckled and my sed rate is 26 with 2-15mm/hr considered normal. My numbers on tests have never jumped out, but I feel like I have all the symptoms of Lupus.

Regular Member

Date Joined Dec 2012
Total Posts : 28
   Posted 1/30/2013 2:18 PM (GMT -6)   
I am currently undiagnosed. My ANA blood work came back yesterday at 1.160, which was abnormal and my ESR was 22.I saw so many doctors who told me I was fine. I kept getting diagnosed with IBS but I just felt like something wasn't right. Finally I saw an internist who asked so many questions, which was good. I felt heartburn and this pain in my stomach, which the found gastritis via endoscopy. I have had diarrhea for months and have lost 14 lbs, either from diarrhea and not eating because the feeling of fullness already in my tummy. It's really scary not knowing what's going on with your own body. My doctor placed a referral for a Rheumatologist, so I'm still waiting and terrified! I hope that you can figure out what is going on with you because I feel your frustration.
Hypothyroid and Irritable Bowel Syndrome since 2000
Possible Crohns Disease (process of diagnostic testing)

Drugs: armour thyroid

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 1/30/2013 6:04 PM (GMT -6)   
It's frustrating getting the right answers and right care when you're a human puzzle.
The important thing is to have a great doctor who listens to you and really tries to find the answers.

Best of luck to you both and I pray that you don't have to face this aggrevating illness.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Nov 2011
Total Posts : 212
   Posted 1/31/2013 10:47 PM (GMT -6)   
I hope that you find the pieces that you need for your puzzle! The Gabapentin has helped my neuropathy a lot. Ambien doesn't work so well anymore. Omeprazole has also helped me for my heartburn, maybe that could be a consideration for you? Heartburn among everything else you have going on not counting the stress can make you absolutely miserable.
Hope you get well or at least better soon!
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)

New Member

Date Joined Feb 2013
Total Posts : 1
   Posted 2/1/2013 10:48 AM (GMT -6)   
I have been diagnosed with Raynauds, Fibro, Gastritis, Plantar Fac, Degenrative Joint Desease, Arthritis and Depression. I was in a car accident almost five years ago. I had a Brain Injury, Broken Neck, Broken Wrist (R), Crushed Hand (R), Crushed Knee (L) and Crushed Foot (L). I broke out in a rash on my scalp a few months ago. I have a leasion on my leg in the shape of a broken ring, My doctor did blood test about a year ago and my platlets were off. He thinks I may have Lupus but no diagnosis as of yet. I am having blood tests on Monday the 5th of Feb. I hope I will get some kind of answer. Not that I want to have Lupus but at least I will have something. The "Not Knowing" is the worst part.

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 5:07 AM (GMT -6)
There are a total of 3,005,824 posts in 329,278 threads.
View Active Threads

Who's Online
This forum has 161805 registered members. Please welcome our newest member, fdgdfhdff8804.
189 Guest(s), 3 Registered Member(s) are currently online.  Details
Nana 2, auzzie, fdgdfhdff8804