Lupus and GI Problems

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Roxxy
Regular Member


Date Joined Dec 2012
Total Posts : 28
   Posted 1/30/2013 1:28 PM (GMT -6)   
Does anyone have an experience with GI problems and Lupus? I have been having problems for months now and now I'm worried because I am undiagnosed and feel like maybe it's severe since it's probably in my GI tract? Any thoughts or words of comfort out there? I asked my GI if it could be Lupus and she said that it generally doesn't manifest there first so I'm thinking maybe I've had this for years and didn't even know it!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/30/2013 4:59 PM (GMT -6)   
I had to have surgery for large hiatal hernia and defective LES about three years ago.
I was also told I had a odd third non-productive movement in my esophagus. I also have a malfunctioning epitiglottis that will let food or liquid drip into my windpipe if I don't swallow just right.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 1/30/2013 8:10 PM (GMT -6)   
Hi Roxxy,

about 5 years ago I started to lose weight and experience a myriad of GI problems: Belching, gas, inability to completely digest my food, up to 20 bowel movements a day. I went from 137 lbs to 108 lbs in 6 months. After a number of tests, they determined that it was GI inflamation.....a course of Prednisone at a higher dose than usual helped to solve the problem. I occassionally experience GI stuff, but not as severe. What helps me is staying away from wheat products....not completely gluten-free,. but close to it. I have had Lupus since 1997.

Laura

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 2/3/2013 7:35 PM (GMT -6)   
I have GERD, have had 5 feet of small intestines removed (two on each side) diverticilitis, short bowel snydrome and numerous other GI problems. Docs says Lupus does not usually effect gastro system.
Post lymphoma,Spleenectomy, Lupus, Sjorgrens, RA , Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 2/3/2013 10:32 PM (GMT -6)   
My diagnosis is still UCTD - but I have been having some esophageal problems for a little more than a year.  Recent endoscopy results included both proximal and distal esophageal rings, active reflux esophagitis, an irregular GE junction and two esophageal inlet patches, along with a small hiatal hernia.  Thankfully biopsies were negative for Barret's esophagus or other pathology for now. 
 
 I've wondered about the possible association to the connective tissue disease, since trouble swallowing is what sent me to the doctor, and it seems to act up when other flare signs start flashing.   My ANA pattern is almost always nucleolar, which worries me a bit - and I wonder about scleroderma as the culprit.  Gastro doctor has put me on PPI for the GERD - but I'm not a fan - dries me out and seems to cause extra bloating. 
 
Researach does seem to indicate an association with autoimmune conditions and GERD, esophageal issues and gastritis.  But as with all things autoimmune - somewhat difficult to pinpoint.  I've been on a gluten free diet for 3 yrs.
 
Roxxy - good luck with your diagnosis and I hope you start feeling better. 
 
 
 
 

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 2/4/2013 10:57 AM (GMT -6)   
Have you been checked for Sjorgrens? It dries you out and causes trouble swallowing. I was miserable with it for awhile. Evoxac and biotene seems to help as well as the new infusion.
Post lymphoma,Spleenectomy, Lupus, Sjorgrens, RA , Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 2/4/2013 5:09 PM (GMT -6)   
Hi Bluejeans - I have been checked for Sjogren's. 5 yrs ago lip biopsy was negative (though the doc was only able to get 2 glands) and antibody testing specific to Sjogren's has also been negative. I did have a positive Shirmer's. Symptomatically, however, - it's a perfect fit. Rheumy gave me an Rx for Evoxac, but I read up on it, and chickened out. Have you taken it? I have also used Biotene, but the effect seems so shortlived.

I would love to hear comments from people who have taken Evoxac......did you have side effects, and was it effective?

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 2/4/2013 6:17 PM (GMT -6)   
I take evoxac. For the first time in months I have moisture in my mouth. Was taking 2 a day. had to up to 3 last 3 months, sjorgrens worse. It can make you sweat, which I do, but I am so much more comfortable on it til I would not do without it. Dr. says most people that it really helps feels like I do about it.
Post lymphoma,Spleenectomy, Lupus, Sjorgrens, RA , Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

amw5
New Member


Date Joined Jan 2013
Total Posts : 2
   Posted 2/5/2013 2:09 PM (GMT -6)   
I went gluten free, and I no longer have any GI problems OR all the terrible body aches and joint pain that lupus can bring. It was well worth becoming gluten free for me.

I dislike when doctors want to write a prescription for every little thing. Changing one's way of eating can solve so many health issues. People just have to be willing to make a change, and I am quite glad I did. It's been so worth it. More than often, more prescriptions bring on more problems.

PS: This is what works for me. I am well aware that what works for one won't work for everyone. Have a wonderful day.

Post Edited (amw5) : 2/6/2013 8:04:49 AM (GMT-7)


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 2/5/2013 8:05 PM (GMT -6)   
Bluejeans - good to know the Evoxac is working well for you. Getting relief is important and sometimes well worth minor side effects.

amw5 - I learned I had Celiac Disease about 3 1/2 yrs ago and have been gluten free ever since. Improvement of symptoms came slowly - and of course, there is trial and error when first embarking on the diet. Malabsorption over many years is very destructive. I am very reactive and have to avoid even tiny amounts of gluten. The fatigue and pain have lessened somewhat on a day to day basis - but flares are still flares. I agree with you about trying to steer clear of too many meds, but some of them are essential and a gluten free diet has not been a complete solution. Maybe if I'd found out about it twenty years earlier......just glad my daughter who is in her 30s found out she also has Celiac. Perhaps it will keep the autoimmune issues in check for her.

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 2/5/2013 8:38 PM (GMT -6)   
We already eat a fat free diet due to my husband being cardiac. He is now a diabetic so we are as low carb as possible. Unfortunately with my short bowel snydrome sometimes potatoes, rice and bread is what I tolerate the best. I do watch my diet for the GERD and try to stay away from rich and spicy foods. Unfortunately diet alone can not always control the problems.
Post lymphoma,Spleenectomy, Lupus, Sjorgrens, RA , Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.
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