Can I get better?

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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/30/2013 5:27 PM (GMT -6)   
I'm confused.
I had my Rheumy sign my paperwork for me to receive my pension early for disability. His answers to a couple of questions confused me.
They are as followed:
Can the person perform the job anymore?
no
What is their diagnosis?
lupus, fibromyalgia, ostoarthritis
Can they recover?
yes, but don't know when shocked
 
I thought that none of my illnesses were recoverable and that I'm bound to have times of being worse. confused
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 1/30/2013 8:11 PM (GMT -6)   
Joy,

I am with you. I always assumed that these were not recoverable diseases.....treatable, yes.

Laura

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/30/2013 10:11 PM (GMT -6)   
I did some research and everything I found on my three main diseases can not be cured. They can be managed but everything will be with me for my lifetime. The fibro and lupus can go quiet but will always come back. The ostoarthritis will continue to get worse.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/30/2013 10:16 PM (GMT -6)   
I forgot there was another question...
Has the patient complied with treatment?
Not yet

Not Yet?!!!! The only medication I've ever turned down was the lyrica because I could not afford a $300 a month medication! I've done Everything he has asked me to do. I've taken every medication he has ordered and done every test he wanted me to have. :P
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

SoSt9
Regular Member


Date Joined May 2012
Total Posts : 277
   Posted 1/31/2013 6:31 AM (GMT -6)   
Joy, I am about to have a disability request put in for my student loans. They ask the same type of questions. I know that the "can they recover" question is all about timing. For my loans to be forgiven, I have to have been unable to work for 60 months prior to the request and 60 months afterwards. To me, his answer was more political than medical. I think by recover, he meant able to get to the point that you can work again - not that you would be cured of the problems. As for the 'has the patient complied?' question, I bet he read it as completed (I know I did at first). I would ask him and if this is the case, see if he can fill the form out again, but be a little more specific with time frame and correct the 'complied' question.
Frequent lurker... Part time poster.

Endolymphatic Hydrops, Hypothyroid, Insomnia, Asthma, Hypermobility, Depression (remission), Anxiety, OCD, Autism (high functioning), Retina Issues, Deviated Septum and Spurs (corrected), Migraines, Skin Problems, and Gastric Bypass Surgery. Suspected: MCTD (probable Lupus), Sjögren's and Fibromyalgia (and something related to dropping blood pressure).

Worthit
Regular Member


Date Joined Nov 2011
Total Posts : 212
   Posted 1/31/2013 11:02 AM (GMT -6)   
I was awarded disability last year and it is a stressful drawn out process. I think one reason that the gov. makes the dis. process so difficult is to discourage anyone who doesn't really need it to give up and go back to work but it doesn't help those who actually need it. I'm going to say that its in your favor that your Rheoumy said that you couldn't perform the work anymore. Just stick with it and keep things moving forward.
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 1/31/2013 3:01 PM (GMT -6)   
You can recover...meaning your lupus can become quiet and not have symptoms for months or years to come.
Amy
Lupus Moderater


dialysis from lupus nephritis

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 1/31/2013 4:39 PM (GMT -6)   
Like Amy said....you can have times of "normality" -- my Lupus is so quiet it's almost unnoticeable now...but that could change in an instant and is totally unpredictable.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/31/2013 10:23 PM (GMT -6)   
I'm in the mist of filing for SSD. Can this affect my approval?
Since I've stopped working I feel a little better but still have bad days.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/2/2013 11:29 PM (GMT -6)   
Hey Joy,

Some folks with lupus can go into periods of almost like remission. Lupus isn't curable, you can at times, when it's so calm, may be med free.

I honestly can't say either way, on your applying for SSDI. I know that it took me over 3 1/2 years before I had my hearing before a judge, then he took time giving out his sentence. He did approve my SSDI, but it did take almost four years to the date before I received my back pay and benefits.

I would assume that if your Dr is filling out paperwork for you to receive your pension early, that he will agree that you are unable to work again. I know that with SSDI, you need the backing from your Drs. They will have many forms to fill out too.

Try not to stress to much, you know it's hard on our bodies. I'd proceed with your application, and most likely, you'll be denied. At that point I would hire yourself an SSDI attorney and let them handle your appeals. They don't expect payment up front, when your case is approved SSDI will pay the attorney out of any back pay you may get. If you don't get back pay, I'm not totally sure how it's handled. I believe they can not get more than $5500.00 of your back pay. I'M NOT 100% on the break down of payments to the attorney.

I received my back pay and I think my attorney was given like $5,350 or something like that and I also had a bill for like $200. That was for admin stuff and I knew I was responsible for that up front.


Wishing you the best.

Hugs,
Barbara
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