I am new to the group. I am experiencing the same problems you are and have gone through numerous tests beginning in 2005.
EMG, several MRIs, CT scans, ANA (twice and both times, the first was positive but a second negative), EKG, EEG, colonoscopy, EGD, western blot Lyme Disease test, ultrasounds, numerous blood tests, urine tests, glucose tests, heart monitor, test for Epsteine-Barr, and the pressure points for fibromyalgia.
I am going for a hyda scan next week. I am 37 years old with symptoms since 12. Began with my lumbar and neck. I threw my back out for the first time at 12 but had recently been beaten up so we assumed it was from that.
I've been bitten by many ticks since very young, and I have considered Lyme.
My symptoms are: widespread pain - stabbing, burning, pinching, dull achy, sudden spasm, contraction like, cramping, and one I can only describe as a spike being driven through my spine -, constantly sweating awake and sleep - wake up soaked, minor tasks such as walking or dishes and even showering (yes I sweat in the shower) -, tiny one or two bump rashes, widespread itching (oh the constant itching! Worse at night), nausea, motion sickness, feeling like bugs crawling on me, tingling, shocking pain, swelling hands, feet and ankles, joint pain, fog, memory issues, anxiety, depression, fatigue, feeling like falling asleep for a split second then,jolted awake all day, loss of balance, tinnitus, grinding and popping in joints especially knees, knee cap getting stuck, abdominal pain, chest pain, loss of breath, dizziness, very sore feet, sore muscles, mouth sores, bright red face especially when over exerted or in sun, pain and feeling like something is on my eye, and peeling finger tips.
My diagnoses are fibromyalgia, degenerative disc disease, rheumatoid and osteo arthritis, sciatica.
A year ago I became violently ill with sudden stomach pain, feeling of blood draining from my face, sweating, nausea and horrible diarhea. The doc thought it was diverticulitis but the MRI was negative. Then ulcer, hernia or gall bladder problems. I basically stopped eating most everything because everything made me sick. This went on for a year. In March I got a UTI which became a kidney infection because I had to keep trying new antibiotics due to supposed allergies, then a month ago a kidney stone, then last week went to ER for ripping groin pain that we thiught was kidney stone hadn't passed. They found sliding hiatal hernia and kept me for 2 days. Did ultrasound because the doc assumed gall bladder problem and said hernia was not enough to cause this many problems. The colonoscopy showed 6 bright red irritation spots that were biopsied negative. And that's where wr are now.
I had a great aunt with lupus and I am convinced it's what I have but rheumys seem bent on finding something else. Currently on an anti depressant Effexor XR, Norco, Benadryl, tordol, and tigan.
I have pain all over my abdomen and groin. Each pain is different like mid area poking, left like contractions, creeping cramping left mid to back and up, very sore and useless shoulders, and random stabbing pains all over abdomen. Plus all over itching that gets worse as night. Also best as I can describe them, pain seizures and restless legs and tremors. I baffle every doctor and ER staff I see. I've seen so many that I've lost count. Most times they give up or give the old "it's just fibromyalgia" excuse and then prescribe pain killers.
I'm nit just going insane from the pain and sickness and itching. It's driving my family crazy. My marriage is on extremely rocky ground and I am so tired. Like the energy and strength has just been sucked from my body. I use a cane or wheelchair. I'm trying so hard to be patient with the doctors but I'm certain it's lupus and they don't want to listen. I'm sorry this was so much. I'm just going out of my mind. Even my brain has become useless. Things I used to gave no problem with like spelling and vocabulary, I've lost. Driving is a nightmare because I forget how to get places. I don't remember things from yesterday and even just today. I lose my words in mid sentence, forget the names of things and have to describe them instead, and things I do every single day like knitting, I suddenly forget how to do.
Please tell me if this sounds like lupus to you. I'm sorry. I'm just so very tired of this. Thank you for listening.